My Stroke Guide

SSTattler: Stroke Association is in the UK but lots of info very usable in Canada, USA, ... etc.

The Stroke Association is building a digital self-management tool to support people in their recovery following a stroke.

My Stroke Guide has been designed by stroke survivors and carers, who have been involved in every step of its development. This ensures that their needs are at the heart of what it does.

Benefits for commissioners:

My Stroke Guide will help stroke survivors with self-management after a stroke, enabling them to monitor and improve their own health and well-being, as well as support others to do the same. Ultimately, we foresee that My Stroke Guide will reduce numbers of GP visits for stroke survivors, and contribute to the prevention of secondary strokes.

The personalised care that My Stroke Guide offers will mean users receive the right information, at the right time, in the right format for them. All of this information will be streamlined so that it is relevant to the user, their stroke, their local area and their support network.

My Stroke Guide can also act as a communication channel between user, carer, health care professional and community.

It will enable the capture of data and information which could give service providers and commissioning bodies valuable information about the care and services that they provide.

Benefits for stroke survivors:

We are creating My Stroke Guide to help make sure that stroke survivors are never alone in their recovery. My Stroke Guide will provide the practical tools to help them understand stroke and deal with its effects alongside peer support to combat isolation.

Most importantly, My Stroke Guide will be available online to users 24 hours a day.

My Stroke Guide’s key features:

• Information tailored to the individual’s needs and local area
• Peer-to-peer support, including an extensive video library and an online forum
• Goal-setting tools and graphs which reflect the individual’s progress
• Advice and signposting on the various issues people can face after stroke.
• My Stroke Guide is currently in development and is undergoing on-going user testing to create the best possible product, which will be ready for launch in October 2014.

For more information on cost, availability, features and functionality or user-led design, or to register for updates, please email mystrokeguide@stroke.org.uk.

Stroke Association would like to thank Nominet Trust for their generous grant enabling us to develop the content for the My Stroke Guide self-management tool. Nominet Trust is a social investor which funds new and innovative ideas that have the potential to make a big impact.


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