Saturday, April 26, 2014

End of a Dream

Diane
The Pink House On The Corner
Thursday, April 17, 2014

So the good news here is that Bob got accepted back into Physical Therapy in Outpatient Rehab at the charity hospital -- and, with just one phone call, the financial aid office is happily picking up the $45.00 per visit co-pay.  Amazing, how easy that was -- this time, now that I know which hoops to jump!

Anyway, Bob had his first PT appointment today, for an evaluation, and it was one of the same PT's that he had a year ago.  Which was nice. To see a familiar face.

As always, with the first PT appointment, we had to "set goals" and this time, the PT pretty much stated matter-of-factly that Bob will never walk again. That really, walking as a goal was beyond any expectation...

Now I know this is true. I think I've known this for a long time. But I always liked to have a dream, you know, a little hope for a miracle, that maybe, just maybe, we could get him back on his feet again...

But, this time PT goals will be trying to get his neck more flexible and stop the twisting of his spine which is happening because of the post-stroke dystonia. And strengthen his torso muscles. So that he may be able to make transfers from wheelchair to bed more easily, and make things like washing his hair and dressing easier (and I will admit all of this has gotten harder this past year and I will admit, his spine is twisting...) and, as the PT said, the goal is just try to improve Bob's "quality of life"....

And I know this is the reality of the situation. I do understand. But, man, it's really hard to give up that dream of walking, you know, of being, sort of, close to normal... and to just think about "goals" being only "quality of life" issues, which by-the-by sounds like something you think about before you put a dog down --- jeepers, and right now, I hate to say,  I have tears in my eyes...



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