Saturday, October 31, 2015

Musing: Book Reading List for Stroke Rehab

Dean Reinke
Deans’ Stroke Musing
Friday, October 8, 2010

Because I was told nothing I started reading to figure out what I could do for my recovery. This is the list of books I read and my thoughts on their usefulness.

Here are the books I've read on neuroplasticity. These are the ones that should be required reading.
  • The Mind and the Brain : Neuroplasticity and the Power of Mental Force / Jeffrey m. Schwartz and Sharon Begley.
  • Train Your Mind, Change Your Brain: How a New Science Reveals Our Extraordinary Potential to Transform Ourselves / Sharon Begley
  • The Brain That Changes Itself : Stories of Personal Triumph from the Frontiers of Brain Science / Norman Doidge.
  • Neurological rehabilitation Carr / Janet H.
  • Stronger After Stroke / Peter Levine The best book by far. This one is worth buying

This one is about neurogenesis which I think the future of stroke rehab will be based on.
  • Spark: The Revolutionary New Science of Exercise and the Brain / John J. Ratey, MD.
  • Phantoms in the Brain : Probing the Mysteries of the Human Mind / v.s. Ramachandran, and Sandra Blak
  • My Stroke of Insight / Dr. Jill Taylor
  • Change in the Weather: Life After Stroke / Mark McEwen
  • Don't Leave Me This Way: Or When I Get Back on My Feet You'll Be Sorry / Julia Fox Garrison
  • Still Here : Embracing Aging, Changing, and Dying / Ram Dass ; Edited by Mark Matousek and Marlene Roeder.
  • Brain, Heal Thyself: A Caregiver’s New Approach to Recovery from Stroke, Aneurysm, And Traumatic Brain Injuries Madonna Siles

These are all personal accounts, they are good for seeing what persistence does but can't be looked at for help in determining if their methods might work for you. This is because none of them has any specific diagnosis of what areas of the brain died and which areas were damaged so you can compare their damage to yours.

  • Teaching Me to Run / Tommye-K. Mayer. If you want to run again, this one gives her step-by-step approach and shows a good way to analyze how to approach rehab.

Other books at least partially about stroke that I found useful;
  • Hippocrates' Shadow : Secrets from the House of Medicine / David h. Newman. Good for realizing that doctors do not know everything.
  • Stretching / Bob Anderson ; illustrated by Jean Anderson.

While I can't do most of these I try to adapt these to loosen my spastic muscles.
  • The Whartons' Stretch Book : Featuring the Breakthrough Method of Active-isolated Stretching / Jim and Phil Wharton with Bev Browning. This is the better of the two stretching books.
  • Anatomy of Movement / Blandine Calais-Germain This one came recommended from my OT. It helps me visualize what muscles are being used for what movements and has some excellent diagrams of walking.
  • A Motor Relearning Programme for Stroke / Carr, Janet H.
  • Clinical Science of Neurological Rehabilitation / Bruce h. Dobkin
  • Willard and Spackman's Occupational Therapy 9th ed. / [edited by] Maureen E. Neistadt, Elizabeth Blesedell Crepeau

Got some additional inhibition techniques for spasticity from here. Good technique:
  • Gait Analysis: Normal and Pathological Function / Jacquelin Perry, Bill Schoneberger
  • The Body has a Mind of its own : How Body Maps in Your Brain Help you do (Almost) Everything Better / Sandra Blakeslee and Matthew Blakeslee
  • Sensory re-education of the hand after stroke / Yekeutiel, Margaret
  • Hand Recovery after Stroke, Exercises and Results Measurements / Johannes G. Smits, Else Boone Smits, and Else C. Smits-Boone. Only useful if you still have some movement.
  • Hand and brain / Wing, Alan M. Not very useful
  • The Healing art of Qi Gong : Ancient Wisdom from a Modern Master / Hong liu, with Paul Perry.
  • The Survivors Club : the Secrets and Science That Could Save Your Life / Ben Sherwood. This one had a statement that in a disaster, 10% of the people became leaders, 80% followed, 10% did nothing/gave up. So the choice is up to you; are you going to be in the top 10%? I am.
  • Deep Survival : Who Lives, Who Dies and Why / Laurence Gonzales.

Psychologists who study survival say that people who are rule followers don't do as well as those who are of independent mind and spirit. When a patient is told he has 6 months to live, he has two choices: accept the news and die, or rebel and live. People who survive cancer in the face of such a diagnosis are notorious. The medical staff observes that they are 'bad patients’, unruly, troublesome. They don't follow directions. They question everything. They're annoying. They're survivors. Make yourself into a 'bad patient'.
  • Faster, Better, Stronger : 10 Proven Secrets to a Healthier Body in 12 Weeks / Eric Heiden, Massimo Testa, and DeAnne Musolf.
  • One-Handed in a Two-Handed World (Second Edition) (Spiral-bound) / Tommye-K. Mayer
  • The Luck Factor : Changing Your Luck, Changing Your Life, the Four Essential Principles / Dr. Richard Wiseman
  • The Talent Code : Greatness isn't Born. it's Grown. Here's How / Daniel Coyle.
  • Talent is Overrated / Colvin, Geoffrey
  • Outliers: The Story of Success by Malcolm Gladwell


These three can be applied to stroke rehab, they essentially say that innate talent doesn't exist, it is all just focused practice, just like our massed practice therapy.
  • Rapt Attention and the Focused Life / Winifred Gallagher
  • Movement Therapy in Hemiplegia: a Neurophysiological Approach / Brunnstrom S. 
  • Adult Hemiplegia: Evaluation and Treatment / Bobath B. 

  • Clinical Neuromythology and Other Arguments and Essays, Pertinent and Impertinent Second Edition / William Landau (This one I will never buy, I will not support him due to his misguided ideas on spasticity)

And here are the general brain knowledge ones:
  • The Three-Pound Enigma / Shannon Moffett
  • A User's Guide to the Brain : Perception, Attention, and the Four Theaters of the Brain / Ratey, John J.
  • The Secret Life of the Grown-up Brain : The Surprising Talents of the Middle-aged Mind / Barbara Strauch. This one was great because it supports the idea that middle-aged brains actually work pretty well.
  • Phantoms in the Brain : Probing the Mysteries of the Human Mind / V.S. Ramachandran, and Sandra Blak
  • Evolve Your Brain : The Science of Changing Your Mind / Dispenza, Joe
  • Rewire Your Brain : Think Your way to a Better Life / Arden, John B.,
  • The Man Who Mistook His Wife for a Hat / Oliver Sacks

Ones I would like to read:
  • Being Wrong : Adventures in the Margin of Error / Kathryn Schulz
  • Peeling the Onion: Reversing the Ravages of Stroke
  • Striking Back at Stroke: A Doctor-Patient Journal
  • Stroke Rehabilitation - Guidelines for Exercise and Training to Optimize Motor Skill / Janet H. Carr and Roberta B. Shepherd
  • Acupuncture for Stroke Rehabilitation: Three Decades of Information from China
  • Rehabilitation of Paralysis Due to Apoplexy / Pan Chang
  • Clinical Science of Neurologic Rehabilitation / Bruce H. Dobkin
  • Stroke Rehabilitation: Guidelines for Exercise and Training to Optimize Motor Skill / Carr J, Shepherd R. Edinburgh: Butterworth-Heinemann; 2003, softcover, 301 pp. illus, ISBN: 0-7506-4712-4.
  • Textbook of Neural Repair and Rehabilitation
  • Acupuncture for Stroke Rehabilitation- Three Decades of Information from China / Hoy Ping Yee Chan
  • Upper Motor Neurone Syndrome and Spasticity, Clinical Management and Neurophysiology / Michael P. Barnes & Garth R. Johnson Eds
  • The Creating Brain / Nancy C. Andreasen
  • A Brief History of the Mind / William H. Calvin
  • 7 Steps to a Healthy Brain / Paul Winner




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