Saturday News

Contents of This Week Saturday News ▶︎ December 19th / 2015

• Definition: CADASIL Syndrome

CADASIL ("Cerebral Autosomal-Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy") is the most common form of hereditary stroke disorder, and is thought to be caused by mutations of the Notch 3 gene on chromosome 19. The disease belongs to a family of disorders called the Leukodystrophies. The most common clinical manifestations are migraine headaches and transient ischemic attacks or strokes, which usually occur between 40 and 50 years of age, although MRI is able to detect signs of the disease years prior to clinical manifestation of disease. A longer definition comes from Wikipedia.

• Video: CADASIL Syndrome

      - CADASIL Documentary
      - C.A.D.A.S.I.L - A Familys Story in Less Than 5 Minutes.
      - Faces of CADASIL
      - CADASIL Explained
      - What is CADASIL Syndrome?
      - CADASIL - A Families - Fox 9 News
      - CADASIL Thoughts of Patients and Families
      - I Just Found Out I Have CADASIL
      - No one Cares About a 11 Year old who is Sick
      - What is a Rare Disease?

• Headline Blog: CADASIL Syndrome
• Brain White Matter Changes Increase Dementia Risk

• Eclectic Stuff: Many articles from many Guest Bloggers about Stroke
• The Devastating Statement in Aphasia Therapy: “You have reached plateau.”
• Reflections
• Day 14 Positive Affirmations
• You Can't Turn Back Time
• 50 Shades of Naughty Foods
• One More Way to Potentially Speed Treatment

• Weekly Columnists
• Musing: Incidence of Stroke or Systemic Embolism in Paroxysmal Versus Sustained Atrial Fibrillation: The Fushimi Atrial Fibrillation Registry
• Sunday Stroke Survival: Adventures in Christmas Baking
• Caregiver: Caregiving Consequences
• Jester: Bear Remover...
• TED Talks - Harald Haas: Forget Wi-Fi. Meet the new Li-Fi Internet
• Rick Mercer Report: Bird Banding & Parliament's Back
• Laid-Back Admin: Copyright © 2010 thru 2016 Stroke Survivors Tattler

• Daily Comics: For Better Or For Worse, Dilbert, Mayes, Doonesbury

• Future Topics in SSTattler

     Saturday News | Future Topic
     --------------+---------------------------------------------
     Jan/16/2016   | Bobath (NDT - Neuro-Developmental Treatment)
     Jan/09/2016   | iPad Pro & Apple Pencil
     Jan/02/2016   | Emotional Recovery
     Dec/26/2015   | Christmas - A Cappella Quartet / Quintet

Definition: CADASIL Syndrome

CADASIL Syndrome From Wikipedia,
      the free encyclopedia.

SSTattler: See as well http://www.cadasilassociation.org/ and www.CADASILfoundation.org ...

Brain MRI from patients with
CADASIL showing multiple lesions.

CADASIL ("Cerebral Autosomal-Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy") is the most common form of hereditary stroke disorder, and is thought to be caused by mutations of the Notch 3 gene on chromosome 19. The disease belongs to a family of disorders called the Leukodystrophies. The most common clinical manifestations are migraine headaches and transient ischemic attacks or strokes, which usually occur between 40 and 50 years of age, although MRI is able to detect signs of the disease years prior to clinical manifestation of disease.

Signs and Symptoms

CADASIL may start with attacks of migraine with aura or subcortical transient ischemic attacks or strokes, or mood disorders between 35 to 55 years of age. The disease progresses to subcortical dementia associated with pseudobulbar palsy and urinary incontinence.

Ischemic strokes are the most frequent presentation of CADASIL, with approximately 85% of symptomatic individuals developing transient ischemic attacks or stroke(s). The mean age of onset of ischemic episodes is approximately 46 years (range 30–70). A classic lacunar syndrome occurs in at least two-thirds of affected patients while hemispheric strokes are much less common. It is worthy of note that ischemic strokes typically occur in the absence of traditional cardiovascular risk factors. Recurrent silent strokes, with or without clinical strokes, often lead to cognitive decline and overt subcortical dementia. A case of CADASIL presenting as schizophreniform organic psychosis has been reported.

Pathophysiology

Video: CADASIL Syndrome

CADASIL Documentary

Uploaded on Sep 24, 2007

A clip from a BBC documentary relating to CADASIL featuring Jack Shields and other sufferers. WMV from http://www.cadasiltrust.org.


Standard YouTube License @ test

Headline Blog: CADASIL Syndrome

Definition: Blog (noun). Add new material to or regularly update to a blog. (≃1990s: blog shortening of weblog)

Brain White Matter Changes Increase Dementia Risk

Bill Yates
Brain Posts

Posted 27th October 2011

Approximately a year ago, I reviewed some of the growing evidence of the clinical significance of brain white matter intensities or lesions.  Magnetic resonance imaging identifies these types of lesions but their significance had been unknown.

Diffuse White Matter Hyperintentsity
in CADASIL

The review noted that white matter hyperintensities appear to increase future risk for several disorders including stroke and dementia.  Additionally, these lesions have increase mortality rates in some follow up studies.

Now an additional study has examined the effect of these lesions on dementia.  Inaba and colleagues examined the progress of cognitive decline in a group of elderly individuals participating in the Honolulu-Asia aging study.

The study followed 267 men between the ages of 74 and 95.  At baseline, brain MRI scans were rated for the presence and grade level of white matter lesions. A cognitive function test (Cognitive Abilities Screening Instrument) was obtained at baseline and five years later repeated.  Significant cognitive decline was defined as a drop of 12 points or more over the five year period.

Eclectic Stuff

Definition: Eclectic (noun). A person who derives ideas, style, or taste from a broad and diverse range of sources

The Devastating Statement in Aphasia Therapy: “You have reached plateau.”

Mark A. Ittleman
The Teaching of Talking

December 16 / 2015

I’ll make this as brief as I can since it is a common occurrence in the rehabilitation field. It involves telling the person who is receiving rehabilitation they have “reached a plateau.” I have seen the devastation of what that can do. I have seen the depression, angst, and feelings of diminished self worth and hopelessness that a client or family member feels.

Often in human endeavors people have said: “That can’t be done.” “It’s impossible,” or there is “no way you will ever walk or talk again!” We have read the stories of people who have overcome adversities and refused to listen to “educated opinions.”  When people don’t want to exert themselves the conversation frequently leads to the opinion that it is not achievable.

I knew of a man who was in such despair after being told that he had reached a plateau, that he took his own life. His wife thought that the “professional should know,” and therefore did not question the recommendation to stop therapy. She later started seeking other professionals to help her husband but unfortunately it was too late.

Please realize that the “plateau” is a common term used when the clinician or therapy institution does not have any more answers. Realize that it could mean you have drained the “knowledge base” there, and that it is time to seek other opinions, institutions, or professionals who may know of other ways to deal with the rehabilitation challenge. To find out more about other alternatives click here: http://teachingoftalking.com/screeningtestanddocs.

Mark A. Ittleman, M.S., CCC/SLP
Senior Speech Language Pathologist
Author:     “Teaching of Talking”
                     http://www.teachingoftalking.com
Facebook: https://www.facebook.com/moshe.mark.ittleman

Reflections

Marcelle Greene
Up Stroke

Friday, December 11, 2015

I concealed my affected hand behind a mirror while I watched the reflections of my healthy hand open and close. This tricked my brain: As I watched the reflection of my healthy hand, I had the sensation that my affected hand mimicked the movement! But I couldn’t resist peaking behind the mirror, where I saw the reality of my curled limp hand. For me, that shattered any benefit of mirror therapy.

"Pay no attention to that man behind
the curtain." -Wizard of Oz

What I find more useful is to study my healthy side for clues on how to use my challenged side. When working with SaeboFlex to grasp balls, I sometimes notice my movement feels unnatural. I am approaching the ball in a way that makes it easier to grasp given my disability. I stop and study how my healthy side would do it.  I observe the angle I reach from, the position of my hand, then try to mimic that with my affected side – because my objective isn’t to pick up a therapy ball – but to move my affected side as normally as possible.

Day 14 Positive Affirmations

Diana Smith
Beyond Reality

December 14, 2015

A pic of me taking a pic of my grandsons footprints.  Yikes, I think my buddha belly is growing.

A quote from Twitter:
“We aren’t responsible for what people think about us, but we’re responsible for what we give them to think about us”. -H.B. Eyring…

My response…that song…Let’s give them something to talk about…and think what you will, makes no difference to me, so I say and I am trying not to let anything bother me.

Again affirmation from twitter:
“The universe provides for my every want and need” ……..keep searching for what you need.

See the original article:

Day 14 Positive Affirmations

in

Beyond Reality

You Can't Turn Back Time

Beth Sinfield
Beth's Story

Saturday, 5 December 2015

What's happened has happened, you can't turn back time, no matter how hard you wish.

All the while, laying in bed on the Acute Stroke Ward at Addenbrooks' Hospital, just thinking 'Why me?' I stared at all the pictures of my friends and family on the wall in front of me, constantly crying and just wishing I could go back to the fun-loving 17 year-old that I was. Back to normality. Just seeing my name on medical documents sent me into a frenzy, 'my name isn't meant to be there..?' This just doesn't happen to anyone in my family. This doesn't happen to me. Up until now I had never been in hospital for anything. Never broken a bone, never suffered anything so serious.

I was the only 17 year-old on that ward. Not that I could move about or speak to anyone, I couldn't make friends with people anyway because our ages were so different. That was another reason for moving me to the Regional Rehab Unit in Northwick Park, at least there I would be with people of similar age, they said. I remember meeting 2 or 3 young people on that ward, stories all so tragic and heartbreaking but so inspiring to see how despite, what had happened, they remained so cheerful.

I accepted very early on that I'd had a stroke. Although I find it hard to comprehend sometimes that something so severe happened to me, never do I wish that it had never happened. I'm not saying that I'm thankful for it, no way, that's crazy! But basically it has set me on a path; I now know what I want in life. Apart from the typical things like love, good friends etc I now know what I want to do; help other brain injured people. Helping those who are going through what I've been through would honestly be the most rewarding thing. Knowing that I'm helping them go through what will be the hardest time of their lives would be invaluable to me. Getting messages now from fellow stroke survivors is just the loveliest thing; I can't quite explain how amazing it is to know that I'm inspiring others. I always get so emotional too, I think to myself 'are they really on about me?'

50 Shades of Naughty Foods

Sas Freeman

December 13, 2015

photo

If you are like me, you like chocolate and don’t need an excuse to eat it. But there is good news for all you chocolate lovers out there. It has been discovered from a study that tracks the impact of diet on long term health of 25,000 men and woman that is highly beneficial. It was suggested they eat up to 100g of chocolate each day and findings identified that it was linked to reducing the risk s of heart disease and stroke.

Dark chocolate has long been identified for its antioxidants and their benefits protecting against certain conditions; one study published last year claimed eating it regularly can prevent obesity and diabetes. Even that eating regularly, in moderation, can be beneficial for the heart. But it has been only more recently identified that milk chocolate has benefits too.

So my message here is don’t obviously go mad but equally don’t feel guilty. Listen to your body and enjoy what you really feel like having. Moderation remains key.

We can spread this goodness and take it a step further taking advantage of the time of year. As stroke survivors, having our daily difficulties, many of us know only too well what it is like not to be able to get out, to get to shops unless someone kindly offers to take us.

Take this further people and think of people in different situations; those on their own, struggling with health or perhaps financially. You don’t have to know who they are, just be aware of their existence. Buy some chocolates and wrap them, and it could be lovely to receive. Put it in a bag, knock the door, then leave before you can be seen, you could even include a card a Christmas wish from someone hoping to spread Christmas cheer? Do what is right for you. Return home enjoy your chocolate whilst looking after your heart, knowing you have warmed someone else’s’ too.

See the original article:

50 Shades of Naughty Foods

in

Sas Freeman

One More Way to Potentially Speed Treatment

Jeff Porter
Stroke of Faith

Thursday, December 10, 2015

Speed, as you know, is key in treating stroke patients.

Recent news about telemedicine shortening door-to-needle time:

▶ A mobile stroke treatment unit (MSTU) operated by Cleveland Clinic which uses telemedicine to connect emergency team members to a hospital-based vascular neurologist, reduced time to tPA treatment by more than 25 minutes in an analysis of the first 100 patients transported. ...

▶ When the 100 MSTU patients were compared with 56 patients matched for age and stroke severity who were evaluated at hospital emergency departments, median door to CT completion time, door to international normalized ratio result time, and time to IV tPA administration were found to be shorter in the MSTU group:

• Time from door to CT completion was 13 minutes in the MSTU group (IQR 9-21 minutes) and 18 minutes in the ED group (IQR 12-26 minutes)
• Time from door to IV thrombolysis was 32 minutes in the MSTU group (IQR 24-47 minutes) and 58 minutes in the ED group (IQR 53-68 minutes)
• Time to CT interpretation did not differ significantly between the two groups

See the original article:

One More Way to Potentially Speed Treatment

in

Stroke of Faith

Weekly Columnists

Definition: Columnist |ˈkäləmnist| (noun). A blogger or a journalist contributing regularly to a blog or newspaper

Musing: Incidence of Stroke or Systemic Embolism in Paroxysmal Versus Sustained Atrial Fibrillation: The Fushimi Atrial Fibrillation Registry

Dean Reinke
Deans' Stroke Musing

Sunday, December 13, 2015

I won't know until I see the doctor but I'm suspicious I have atrial fibrillation also - Incidence of Stroke or Systemic Embolism in... 

Takabayashi K, Hamatani Y, Yamashita Y, Takagi D, Unoki T, Ishii M, Iguchi M, Masunaga N, Ogawa H, Esato M, Chun YH, Tsuji H, Wada H, Hasegawa K, Abe M, Lip GY, Akao M.

Author Information

Abstract

Background and Purpose:

There is controversy on the relationship of the type of atrial fibrillation (AF) to stroke. Although several studies show that patients with paroxysmal AF (PAF) have a stroke risk similar to those with persistent or permanent AF, recent studies suggest that PAF is associated with a lower rate of stroke. Limited data on stroke risk associated with PAF are evident in Asian populations.

Methods:

Sunday Stroke Survival: Adventures in Christmas Baking

Jo Murphey
The Murphey Saga

Thursday, December 25, 2014

Today is Christmas and I pray that each of you have a day full of love and companionship.

I decided that this year I would change things up and challenge myself. No, I didn't offer to do Christmas at my house. I'm still not ready or comfortable enough in my skill levels to take the challenge of 75 people in my home for dinner again yet.

Instead of my usual cake pops, Rudolf and Santas, I decided to bake an 8" cheesecake. Actually two of them. One went to a neighbor who elfed me this year. More on that in a bit.

This was a challenge/ adventure that almost undid me. My cheesecake takes about eight hours to make normally, but this was a twenty-four hour for each one. It's a good thing I started on Saturday) I made Double Chocolate and Peppermint Cheesecakes.

The first challenge was making chocolate refrigerator cookies for the solid base of the cheesecake. Mixing the cookie dough went fine thanks to the stand mixer daughter #2 got me last Christmas. But rolling it into tube and then in plastic wrap was a nightmare. After two hours of playing with it, I finally got them into the freezer to chill. Yeah, they are refrigerator cookies when you have the time to let them chill in the Fridgidaire overnight, but I wanted to bake these off in a few hours. Once chilled, I sliced cookies off the rolls and placed them on a couple large baking pans. I think this is the first tie I used my big oven this year. They turned out perfect. Transferring to cookies from the pan to e rack to cool was another matter. They stuck to the parchment paper. You wouldn't think that any cookie made with THREE pounds of real butter would stick to anything, but they did. Eventually, they all cooled, and then I crumbled them in my mini food processor.

Caregiver: Caregiving Consequences

Diane
The Pink House On The Corner

Friday, December 11, 2015

Yesterday, I had a dentist appointment.  This was the first one in many years. I tell you, not because my teeth are fine.

For the past 4+ years, Bob has always come first. And when money was limited, there is just so much in the budget, that my health needs always fell by the wayside because Bob's needs were so much more...

This is not an uncommon theme among caregivers. A recent report issued by NAC (National Alliance for Caregiving) and AARP indicates that among the estimated 34-40 million unpaid caregivers in the US, a full 67% report that they "put their care recipient's needs before their own".  That's a lot caregivers not going to the doctor or dentist.

My teeth have been bothering me for years.  Yesterday, I finally had a molar extracted and a partial deep root cleaning -- the cleaning will be a two step process and will finish up with another appointment.  The doctor told me I was lucky that my long-time neglect hadn't caused me to lose more teeth...

The procedure was not cheap. And not fun. And just goes to show how a caregiver can put themselves at risk when we neglect ourselves.

Unfortunately, it's not a perfect world and too many caregivers do not have the time or money to take care of themselves....

See the original article:

Caregiving Consequences

in

The Pink House On The Corner

Jester: Bear Remover...

Jackie Poff
Stroke Survivors Tattler

A homeowner in Alberta wakes up one morning to find a bear on her roof. She looks in the yellow pages and finds an ad for "Alberta Bear Remover." So she calls the number and a man says he'll be over in 30 minutes.


The bear remover arrives and gets out of his van. He's got a ladder, a baseball bat, 12-gauge shotgun and a mean looking pit bull dog.

"What are you going to do?" the homeowner asks.

"I'm going to put this ladder up against the roof. Then I'm going to go up and I'll knock the bear off the roof with this baseball bat. When the bear falls off the roof, the pit bull is trained to grab his testicles and not let go. The bear will become subdued enough for me to put him in the cage in the back of the van."

Then he hands the shotgun to the homeowner.

"What's the shotgun for?" asks the homeowner.

"If the bear knocks me off the roof...  Shoot the dog!!"

TED Talks - Harald Haas: Forget Wi-Fi. Meet the new Li-Fi Internet

TED

Published on Dec 2, 2015

What if we could use existing technologies to provide Internet access to the more than 4 billion people living in places where the infrastructure can't support it? Using off-the-shelf LEDs and solar cells, Harald Haas and his team have pioneered a new technology that transmits data using light, and it may just be the key to bridging the digital divide. Take a look at what the future of the Internet could look like.


Standard YouTube License @ TED

Rick Mercer Report: Bird Banding & Parliament's Back

RMR

Rick and Bird Banding

Published on Dec 2, 2015

Rick visits Long Point, ON to band birds with Bird Studies Canada as they track migration patterns.


Standard YouTube License @ Rick Mercer Report

Rick's Rant - Parliament's Back

Published on Dec 2, 2015

Rick’s Rant for December 1st, 2015.


Standard YouTube License @ Rick Mercer Report

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