Showing posts with label Rehabilitation. Show all posts
Showing posts with label Rehabilitation. Show all posts

Saturday, March 29, 2014

Def'n: Film Festival

Film Festival
      From Wikipedia, the free encyclopedia


A film festival is an organised, extended presentation of films in one or more cinemas or screening venues, usually in a single city or region. Increasingly, film festivals show some films outdoors. Films may be of recent date and, depending upon the festival's focus, can include international and domestic releases. Some festivals focus on a specific film-maker or genre (e.g., film noir) or subject matter (e.g., horror film festivals). A number of film festivals specialise in short films of a defined maximum length. Film festivals are typically annual events.

The most well-known film festivals are the Venice Film Festival, the Cannes Film Festival and the Berlin International Film Festival, the latter being the largest film festival worldwide, based on attendance. Venice's festival is the oldest major festival, and the longest continually running one. A 2013 study found 3,000 active films festivals worldwide—active defined as having held an event in the previous 24 months.

History


Video: 2014 Neuro Film Festival



We will have the topic of "Aphasia , ..., Stroke, Traumatic Brain Injury",  a sub-set of the 2014 Neuro Film Festival. If you want to see the all the movies look at YouTube - 2014 Neuro Film Festival.


We will use the YouTube Neuro Film index #nn with corresponding Wikipedia:


Neurocritical Care: Epilepsy (#03 - Epileptic Seizure)

Published on Feb 20, 2014

The Massachusetts General Hospital Neuro Critical Care Team's excellence in service and innovation brings a young man back to life after epileptic seizures leave him comatose for five months. This video features Dr. Jonathan Rosand and Dr. Andrew Cole.

This film has been entered into the 2014 Neuro Film Festival from the American Brain Foundation at www.NeuroFilmFestival.com. Help us pave the way to finding a cure for brain disease.

Standard YouTube License @ MassGeneralHospital 


Saturday, March 15, 2014

Def'n: Understanding Lip Reading

SSTattler: This articles are two Wikipedia about Lip Reading and Speech Perception. My problem is a good example - I had a stroke 15 years ago and it took 3 years after it that I finally understood I have problem about "Speech Perception" i.e. the audio is perfect but the "words" are very imperfect e.g. an other person can face the other way and I understood just "noise" not "words"... Try turn-on "Caption" on the TV - it does work brilliantly! Take a course on Lip Reading - it works excellently to help you to "hear"! (Deafness cause a stroke happen as well but not in this article).


Lip Reading 

      From Wikipedia, the free encyclopedia



An audiologist conducting anaudiometric hearing test
in a sound-proof testing booth
Lip reading, also known as lipreading or speechreading, is a technique of understanding speech by visually interpreting the movements of the lips, face and tongue when normal sound is not available, relying also on information provided by the context, knowledge of the language, and any residual hearing. Although primarily used by deaf and hard-of-hearing people, people with normal hearing generally process visual information from the moving mouth at a subconscious level.

Process


Video: Understanding Lip Reading

Understanding Lip Reading 

Uploaded on May 26, 2011

Lip reading is the main method of communication for people with severe hearing impairment. Especially for those who lost their hearing later in life or a stroke. But many people really don't understand what lip reading is really about. There are lot of misconceptions about lip reading that can impair communication. So here's a little more about lip reading and some tips to help a hearing and a person who reads lips to better communicate.

Standard YouTube License @ Ron Jackson



Saturday Comics




For Better and For Worse
Lynn Johnston - 2014/03/09

".... breakfast in bed !!"
Dilbert
Scott Adams - 2014/03/09

"I want you to build a fusion robot that..."

Peanuts
Charles Schulz - 2014/03/09

"How'd that ball get under there?" 

Doonesbury
Garry Trudeau - 2014/03/09

"Hey, Justin, want to celebrate with a smoke?"






  
** I tried to get low or free price at the people http://www.UniversalUclick.com/ for the images for the cartoons. It was too high for Stroke Survivors Tattler i.e. we are not a regular newspaper and our budget is very low. Fortunately, you will have to do only 1-click more to see the cartoon image, it is legit and it is free using GoComics.com and Dilbert.com.
Note: Now SSTattler are running cartoons starting on previous Sunday.

Eclectic Stuff

Definition: Eclectic(noun) a person who derives ideas, style, or taste from a broad and diverse range of sources.

Sunday Stroke Survival ~ Read My Lips

Jo Murphey
The Murphey Saga
Sunday, March 9, 2014

For me post stroke it was an imperative that I form words correctly even if the sound wasn't right. My husband is deaf and reads lips. It was going to be the only way we could communicate short of our own limited version of sign language.

With my stroke came aphasia. I had extreme difficulty forming and saying words. In fact I couldn't vocalize anything except for guttural sounds.

Now imagine you are having a stroke or had a stroke with a very droopy face trying to form the words, "I need help!" to a deaf spouse who reads lips. That was me almost two years ago. My mouth couldn't form the words right for him to understand. I had to call my daughters to get help. Even though my speech was badly slurred and staggered they knew something was wrong and came running to my aid.

Run and Not Grow Weary

Jeff Porter
Stroke of Faith
Thursday, March 06, 2014
[B]ut those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.
I never get tired of that particular verse. And I certainly need it now.

A few weeks ago, I mentioned on this blog a knee injury. Initially, it seemed to resolve itself but not long ago, it came back with a vengeance. An MRI later, I was told I have a torn meniscus (cartilage between the femur and tibia).

And bad timing for this injury: Due to travel plans, I can't get it fixed (a relatively simple arthroscopic procedure) until April 1. So for the next several weeks, I can't run. That's quite a shock for someone who's been running for 26 years.

But like the Isaiah verse above mentions, hope is present. Like in my stroke recovery days and now, the key was - and is - to place hope and trust in God.

Here's hope that in warmer days ahead, I'll run and not grow weary. Again.



See the original article:
in

Distractions, Disablements, Displeasers, aka Aah! There Are Others, Too!

Joyce Hoffman
Mar 3, 2014

I have my contact info in my blog. So I was not surprised that I recently received an email from a lady named Grace, and this is what she said:

Hi - I like your blog, but it's hard to read because of the "ink stain" (the wallpaper of your blog). As a stroke survivor, any visual distraction can be hard to deal with.

Thank you, Grace, for that comment. In an effort to satisfy all my readers, I changed the wallpaper.

Here is what my blog looked like before:



Here is my blog now:


I chose the first wallpaper because it made me feel like I was a columnist for the newspaper again. I chose the latter wallpaper because of Grace.

Snow and Strokes Do Not Mix Well Together

Rebecca Dutton
Home After a Stroke
March 4, 2014

I grew up in Chicago where the schools were closed only two times in twenty years for snow. In the twenty-five years I have lived in New Jersey I have been telling the wimps who complain about bad weather that in Chicago they throw a first grader out a first story window when it snows.  If you can see the top of the child's head school is open.  But I have never seen snow like this winter in New Jersey.  We have had a major snowstorm every week for six weeks.  When I saw big pile of snow blocking my car I panicked.  The photo does not do the pile justice -- it is eight feet long and three feet high.  The shadow you see on the far left is my car.

When I lived in the city, going to work involved digging my car out of the snow cave the snow plow created by pushing snow up against the side of my car.  Coming home from work meant finding or creating a snow cave big enough for my car.  Fortunately my trailer park has its own maintenance staff.  Our maintenance man uses a backhoe to move snow that has piled up.  See the snow piled on my lawn that Joe did not cart away.  Moving a big pile of heavy, wet, ice-encrusted snow is too much even for an able-bodied caregiver.



See the original article:
in

#PaddyPower & #Pistorius a Brilliant PR Strategy?

Kate AllattA Rocky Stroke Recovery
March 5, 2014






They say no publicity is bad publicity.

We all know who PaddyPower is now.

Wall to wall publicity & exposure in all traditional national and international media & online.

A good marketing stunt I have to conclude whether you agree with it or not.

Now you’ve all heard of Paddy Power!

Pistorius a better looking OJ?

This is nothing to do with stroke but the whole thing has entertained me on my dog walk today!









See the original article:
in

Monotony

Amy Shissler
My Cerebellar Stroke Recovery
Mar 10, 2014

Thanks for a great weekend Barb and Tom!

Everything about post-stroke life is very monotonous. Everything.  When I first had the stroke and for about a year and a half afterward my speech was incredibly monotone and I had an insanely flat affect.  I couldn’t express emotion.  I had emotions -and lots of them – but to the outside world it didn’t appear that way.  I think the only emotion the world could see was when I cried.  I cried all the time.  Now things are very very different.  I’m able to be very expressive.  My external voice matches my internal one.  For a long time, it did not.  During the first year or two after something like this, no matter where in the brain your injury was, I think something similar to this might be a problem not because of the area of the brain that was injured but because there was a major brain insult.  But I’m not a brilliant neurologist so I don’t know for sure.  I was not affected cognitively at all but it sure seemed like I was that first year because my brain as a whole was injured and recovering from being very swollen.  My brain just wasn’t right.  I mean my brain is still not right but the effects are much different now that I’m chronic.  But I wasn’t dumb or a different person, I was injured.



See the original article:
in

Why Dynasplint Is Half Dead (and All Dead for Survivors)

Peter G. Levine
Stronger After Stroke
Friday, March 7, 2014

Do you have muscles tightened by spasticity?

Sarcomeres are the small units in muscle that contract when your muscles contract. (Great image here. Look at the bottom right corner.)  Sarcomeres will increase in numbers when muscle is put through a prolonged stretch. Increasing sarcomeres is how muscles are lengthened. Lengthening of muscle and increasing sarcomeres increases flexibility. Which is a good thing because we can talk about neuroplasticity until the cows come home but if your arm (or whatever) "won't go that way," all bets are off.


OK. So how might you increase the number of sarcomeres? One way that many clinicians think works is called "dynamic splinting." The idea is that you'd wear something that would hold you in a position that would stretch you. If you could wear it at that posture for 2-3 hours, the clinician would "dial in" a more "aggressive" range of motion. Over time you'd gain sarcomeres which would allow you to have more range of motion.

Sounds groovy, right?

It works for, say, marital artists who want flexibility so they can KICK ASS.

Dynamic stretching ROCKS! Sometimes!
You stretch, you get a longer muscle, everybody's happy!

But yeah. That whole science thing gets in the way. Don't you just hate science?

It turns out that the way to elongate (add sarcomeres)  "normal" muscle is nothing like the way you'd do it in spastic muscle. To stretch spastic muscles so they gain length, the stretch must be held at least 48 hours. And dynamic splints are not kept on for anywhere near that long; a few hours, max.

And here's another little interesting tidbit. The 600 pound gorilla of dynamic splints is a company call DynaSplint (get it?) and they've had a little bit of trouble lately. The kind of trouble where they may have defrauded the Federal Govmint. And they laid off 500 workers in one day. Which makes sense since it was a DynaSplint salesperson that was the whistle-blower that brought the whole company down. Which then triggered their bank to stop their operating budget.

And while I have no idea of any of those problems are warranted, one thing I do know is that they are fraudulent in another way. Again and again they claim that their splinting systems help folks with spasticity. They also claim they increase muscle length. Don't buy it!



See the original article:
in

Human Planet - Web Exclusive Series Trailer - BBC One

Monty Becker
Stroke Survivors Tattler
Uploaded on Jan 11, 2011

http://www.bbc.co.uk/humanplanet

Human Planet is an awe-inspiring, jaw-dropping, heart-stopping landmark series that marvels at mankind's incredible relationship with nature in the world today.

Uniquely in the animal kingdom, humans have managed to adapt and thrive in every environment on Earth. Each episode takes you to the extremes of our planet: the arctic, mountains, oceans, jungles, grasslands, deserts, rivers and even the urban jungle. Here you will meet people who survive by building complex, exciting and often mutually beneficial relationships with their animal neighbours and the hostile elements of the natural world.

Human Planet crews have filmed in around 80 locations, bringing you many stories that have never been told on television before. The team has trekked with HD cameras and state of the art gear to film from the air, from the ground and underwater. The result: a "cinematic experience" created by world-class natural history and documentary camera crews and programme makers.

Standard YouTube License @ BBC

Why I Hate Aphasia...

Diane
The Pink House On The Corner
Sunday, March 9, 2014

This, just one example from last week:
Bob: Too low.
Me: You need a boost? (meaning, to be pulled up in bed)
Bob: No. Too low.
Me: If you're too low, I can boost you up a bit. Not much, but a bit.
Bob: Nooo. It's too low.
Me: What's too low?
Bob: Too low!
Me: What is too low, sweetheart? I don't understand.
Bob: (making a gesture with his hand, holding it first up higher and then down lower) Too low!
Me: I know what "too low" means. What is too low?
Bob: (getting frustrated) TOO LOW!
Me: (also frustrated) WHAT IS TOO LOW?! I DON'T UNDERSTAND!
Bob: (smacks the towels, neatly arranged, on his bed) TOO LOW!
Me: The towels? The towels are too low? You want more towels?
Bob: (smacking the towels, again) NO! TOO LOW!
Me: Do you want more towels? I can get you more towels.
Bob: NO! Towels! (smacks the towels again)
Me: What's wrong with the towels?

Granny's Advise

Jackie Poff
Stroke Survivors Tattler
Yes, our grandmothers still had genuine knowledge of staying naturally healthy!!!

My granny lectured me about her practical knowledge:
  • “For better digestion, I drink beer,
  • for loss of appetite I drink white wine,
  • with low blood pressure red wine,
  • with high blood pressure cognac,
  • and whenever I have a cold, I drink Vodka.”

“And when do you drink water?”

“I have never been that sick!”


The End

Barb Polan
Barb's Recovery
March 2 / 2014

As many of you know, I’m writing a book about my recovery experiences, a book about my pilgrimage to return (I hope and expect) to rowing and other physical activities that I have lost the ability to do, the ones I miss.

After completing the first draft (and going back through it scores of times polishing), I sent it to the best editor I know for input. She did a meticulous job line-editing it, and included comments (Kathy: please forgive me if I get this wrong, but it’s what I understood your email), all of which were very valuable. All except one that was a little off-putting: “You might want to reconsider the ending.” I took a deep breath and kept an open mind.

Remarkably, that comment turned out to be the most valuable of all. Here’s what happened:

Re-reading it with an eye toward narrative flow, I was on the look-out for a wrong turn, and when I reached the end and found a mish-mash of pasted-in paragraphs, non-starters that I had neglected to remove, I thought, “Bingo.” I then removed them, so that the end was all cleaned up and the way I had intended.

The next time I read through, when I got to the end, I realized that that was NOT the ending I wanted, that I had arrived at the wrong conclusion, that I no longer believed the conclusion to be true, that I really needed to “reconsider the ending.”

I had ended with the observation that the stroke survivor had been given a second chance and now had the opportunity to rebuild a life, to do a reset. I suggested examining his/her life and keeping the positive components, while rejecting the negative ones. “Jettison the negative,” is the common phrase. This includes rejecting friends and family members who are unsupportive or critical; eliminating negative thoughts and remaining positive; and recognizing blessings and expressing gratitude.

While those are good suggestions that might be a good first step for survivors inundated by negativity and struggling to breathe, I actually don’t believe it’s a mature, self-aware response to pain. I don’t find that a quest to reject everything negative from a life solves problems; instead it shuts a person down and guards against opportunities to grow.

And it’s not what I’ve done in my own post-stroke life, so why was I giving that trite advice to others?  Instead, my response has been to try to counter, rather than reject, the negative.

This pilgrimage of mine, my trek toward recovery, has encouraged me to meet frustration, anger, and insults with kindness, not my own anger and resultant rejection. To remain open and communicative, not shut down. It has worked for me – I am happy and well adjusted, although not complacent or accepting of my limitations.

I’m still working hard to get back to rowing those gig boats. It may take me the rest of my life, but that’s what I’ve got.



See the original article:
in

“Repunzel,” The Teaching of Talking

March 12, 2014

We are here in Brighton, England.  It is a wonderful city that now feels like a cross between Greenwich Village, San Francisco and New York City.  But let’s get on with the story…

Last night as I was completing an article for publication, I heard a voice calling out at full volume:  “Repunzel, Repunzel, Let down your hair!”  I thought it weird that I should be hearing a plea such as that from the other side of the court-yard.  But then, I thought, “This is England, and I believe the story originated here.”

Repunzel
(A True Story…Only the names
have been changed to protect the innocent…)
After a brief Google search on Wikipedia,  and recalling the story from childhood days,  it was learned that Repunzel was a German fairy tale, and was written in about 1812.  It involved the story of a young child who was given to a wicked enchantress when born to keep the father out of jail.  He found a special plant in the enchantress’s yard that helped his wife conceive a child.  The enchantress promises not to report him to the police in exchange for the child.

The child who was named Repunzel grows up to be a beautiful young lady who is then imprisoned by the enchantress in a castle until a prince finds and rescues her.  He calls out to  her “Repunzel, Repunzel, Let down your hair!”  She does.  He rescues her and they escape.  And…”they live happily ever after.”  (Please refer to the story or to Wikipedia or Google if you want more of the details to the story .)

I have not figured out yet whether this true life experience had any deep or personal significance other than knowing there are many people with speaking difficulties who are locked away inside their bodies, unable to speak in their homes without skilled speech therapy care.  In many circumstances aide is not available or affordable.  Therefore the only one left to rescue the person from a world of silence or misunderstanding is a loved one or parent who can learn to intervene by learning methods of speech and language stimulation and providing this at home if appropriate for the child who has not learned to speak or for the adult who has lost the ability to talk.

“Caregiver, Mother, Father, Loved one:  Learn to Stimulate Talking!”



Mark A. Ittleman, M.S., CCC/SLP
Speech Language Pathologist, 
Author: The Teaching of Talking (our website and place you can order an autographed copy of Teaching of Talking).
Facebook:  Please like us on:  teaching of talking
e mail:  markittleman@teachingoftalking.com

Catherine Bracy: Why Good Hackers Make Good Citizens

Published on Feb 25, 2014
SSTattler: The term  - noun "hackers" or verb "hacking" was used by computer software people (for years) to "break it" or "leak it" or ... and to "fix it" so that is "correct" and "publish it". There is no hacking mischief at all...
Hacking is about more than mischief-making or political subversion. As Catherine Bracy describes in this spirited talk, it can be just as much a force for good as it is for evil. She spins through some inspiring civically-minded projects in Honolulu, Oakland and Mexico City — and makes a compelling case that we all have what it takes to get involved.


   Standard YouTube License @ TED

RMR: Rick and Para-Nordic Biathlon

Published on Mar 5, 2014

Rick skis and shoots with
para-biathlete Mark Arendz
in Lake Louise, AB.


   Standard YouTube License @ Rick Mercer Report