Saturday, June 28, 2014

Wishes and Hopes: Do They Amount to a Hill of Beans?

Joyce Hoffman
The Tales of a Stroke Patient
May 18, 2013

It was a famous line in the film Casablanca that gave "hill of beans" its notoriety. Humphrey Bogart says to Ingrid Bergman, who's married to another man, “Ilsa, I’m no good at being noble, but it doesn’t take much to see that the problems of three little people don’t amount to a hill of beans in this crazy world."

I'm having one of "those days" because I wish there was something to do about my stroke. And like Bogart says, the stroke "don't amount to a hill of beans in this crazy world."

Right now, I'd have an operation on my brain if there could be some improvement in my speech, my arm, my leg, any one of the above. Maybe some neurosurgeon could close the hole in my brain with stitches. But I take the blood thinner called Coumadin, and there's the likelihood of complications like significant bleeding into my brain, especially with stitches. Alas, I have a hole in my head. Please. No LOLs.

In reality, no doctor in his/her right mind would want to try "it," i.e. close the hole in my brain caused by dead brain cells that couldn't regenerate. Cells in the brain just don't do that once they die. The bleeding causes them to die and I had a hemorrhagic stroke when the clot caused my blood vessel to burst. My stroke anniversary just passed. I had a stroke in April 2009 and I'm tired from it. On the surface, I'm generally pleasing and happy. Below the surface, not so much. Still. Even now.

I'm angry though it never shows, at least to the general public. The bitter side says, "Why me?" The euphoric side says, "Why me?" also. Weren't you listening? I already told you. I'm having one of those days where floods of memories come back to me even though I attempt to shun them.

A memory of my mother appears right before my eyes. She had a stroke, too, but there were signs years before. Everyone--my mother, her family, her friends--ignored them. She fell every so often when she would become anxious over one thing or another. She probably had a  transient ischemic attack (TIA) which is like a mini stroke, producing like symptoms of a stroke: weaknesses on one side of the body, blurry vision, trouble talking. About 1 in 3 people who have a TIA ultimately have a stroke. Then she had the big one, a name that should be only reserved for California earthquakes. But that is what a stroke amounts to--an earthquake in your brain. I feel happier now, for the moment, that I just invented a new phrase for strokes. But then again, happier is relative.

I fell every so often, too, walking along the corridor or on the street. But I'm not a complainer; neither was my mother. So we didn't do anything about our falling. I attributed my mother's falling to anxiety; I attributed mine to clumsiness or tight shoes. My mother instilled a fear of doctors in me that was so strong, I screamed when the doctor would touch me in appropriate places so we didn't take any action on our falling. Or maybe it was the shoes. My mother had enormous bunions. So do I. But I believe the falling was a precursor of the stroke that damaged our lives forever. My mother was in her eighties, but I was 61, the new 41.

That's enough for memories. I don't want to spend any more time on them. I can't; I shouldn't. I am in the present now. I looked, examined, and researched many ideas--stem cell therapy to make me, even more, mostly whole once again (all the doctors that I researched were fraudulently going after people's money), the Walkaide and the Bioness to enable people walk more efficiently (I wasn't a candidate because of my hyper-extended knee), slings that reduce subluxation in my shoulder (I got one from my "friend" on Facebook, but after three months, I didn't improve any further). I just got the name of a doc who does Hyperbaric Oxygen Therapy. I'll try that next.

The definition of crazy is when you do the same thing over and over, expecting different results. Maybe I'm crazy. Or maybe I'm hopeful. I'm always searching, and I always reach dead ends. But I still try to find magic in the medical community. Perhaps I'll blow a hole in that definition of "crazy" yet.

The weather is heating up, and summer is about 30 days away. But all the seasons the same for me, and just the temperatures are different. The days are consumed by the stroke, searching to find the silver bullet that will make it all, or most of it, or part of it, go away. I'll take any improvement. My friend calls me Pollyanna, a character in a 1913 novel that turned into a popular term for someone with an optimistic outlook. I say, "How can I NOT be." Hope and wishes are both traits of Pollyanna.

Today, I'm going to do research on Amazon for pomegranate and chocolate. That's to take my mind off of the stroke, but only momentarily. I am obsessed with the stroke and who it's going to hit next. "On average, one American dies from stroke every 4 minutes," say the Centers for Disease Control, (CDC), and it is a fact. How can I not be obsessed, I scream silently to myself.



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1 comment:

  1. But Joyce, we HAVE to try to do the same thing over and over again - it's our only way to make new connections from brain to nerves controlling muscles. Just do it - get your hamstring to work and extort control over your knee; even if it takes you years, that's what you've got.

    What did you find out about pomegranate and chocolate?

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