 |
| Pamela Hsieh Rehab Revolution |
I decided to repost this article, originally published on Refinery29, with Felicity’s permission. With October now in full swing, I felt called to help her truly spread awareness of the reality of breast cancer rather than just following a “trendy” and charismatic marketing movement that sweeps the nation once a year.
It especially resonated with me because I am all too familiar with the alienating nature of surviving what is often considered an “older person’s” malady. . . .
As a gut reaction, you’re probably thinking that Palma is way too young for cancer. After all, haven’t we assumed that the big C is something that could happen, but only later in life, after we have kids, or become aunts, possibly grandmothers? Certainly not to young, talented photographers living in Brooklyn at the prime of their lives. But sure enough, this unlikelihood is exactly what Palma faced. “The problem with being so young and uninsured, is that it takes quite a bit of effort to get any attention. My doctor at the breast center felt the lump, shrugged, and said it was probably a cyst. Even after multiple inconclusive (and mind you, expensive-as-hell) tests, my doctor was still convinced that because I was young, that it just could not possibly have been something to worry about.” Though the process was more drawn out than Palma would have hoped, she is still grateful she pushed her doctor for testing until they had answers.
But she certainly wasn’t expecting the diagnosis she received. “The doctor came in, sat down, took his glasses off, looked me in the eye, looked back down at his chart, and awkwardly said, ‘So, it's cancer.’ ” We imagine this sort of news isn’t something you can really prepare for, and so Palma's reaction seems on point: “I just sat there. Numb. Totally unable to react. It took me a couple hours to really absorb it and start crying. In some ways it felt like reality was ripped away from me, and I no longer was a part of the present. All I could think was, ‘What? How? Why? Is it my fault? What did I do wrong? Am I going to lose my breasts? Am I going to lose my hair? Am I going to die?’ And all the doctor could say was that he couldn’t tell me much more, nor do anything else for me. I had to find a surgeon, and I had to somehow get health insurance.” Without any health insurance and now facing the burden of an indefinite amount of treatments (and bills), Palma had no choice but to adopt a take-charge attitude against the cancer.
What’s remarkable about Palma’s life before her diagnosis is that, in comparison to other cancer stories she’s heard, she considers it fairly unremarkable. “I feel like all the stories about young adults with cancer are how they were just launching their careers, starting families, etc., whereas I got caught in the middle of an existential crisis. I graduated from NYU with an MA in International Studies about two years ago, and was amped to begin working in women’s rights. Despite churning out hundreds of resumes, the best I could do was anything it took to survive — bartending, waiting tables, baby-sitting, tutoring, freelance photography . . . So I kept at it, hoping that somewhere down the line, things would fall into place for me. And then cancer hit, and stopped me in my tracks. It’s crazy to think how hardly a year ago, I had a totally different concept of what it meant to survive.” Indeed, young New Yorkers consider survival the ability to pay your rent and eat more than packaged noodles every day. Now, Palma’s definition of survival consists of just one mission: to be well again.
So, what’s her treatment exactly? On April 22, Palma underwent a lumpectomy, which removed the lump from her breast. On June 5, she froze her eggs. Later that month, Palma began taking Tamoxifen, a synthetic drug used to treat breast cancer, and one that she will have to take for the next 10 years. She also began radiation therapy on July 10, which she is set to complete by August 20. But, with her sessions running five days a week, that’s a whopping total of 30 sessions. After her radiation treatment, Palma will begin ovarian suppression (a method of slowing the growth of hormone receptor-positive breast cancer), which will last two to three years. Then she’ll be kept under close watch for the next 10 years, which means regular check ups every three months, and regular screenings such as mammograms and MRIs. In short, her life has changed entirely. “All of a sudden, your days are consumed with constant doctors’ appointments, procedures, treatments. And when you're not at the hospital, all you can do is think about it. Who wouldn’t feel isolated and scared? Positive and inspiring thoughts can certainly be hard to come by. But I’ve also found that by allowing myself to feel scared, to feel sad, to feel angry — to just feel whatever it is I need to feel — that I come out of each downward spiral feeling stronger and more inspired.”
 |
| Photo: Courtesy Of Felicity Palma. |
Though she may be the only person in the treatment rooms under the age of 40, she certainly isn't facing her experience alone. Palma’s boyfriend, Spencer, has not only been her means of support, both emotionally and financially, but he, too, must take on a role that is normally reserved for older people — that of a primary caregiver. “He has been my rock throughout all of this. Since my family and many of my closest friends live in California, Spencer has taken on much more than I think many caregivers in our age group do. He came with me to every single doctor’s appointment, helped me through every difficult decision I’ve had to make, and he’s now working two jobs, just to keep us afloat. This whole experience has been extremely difficult on us as a couple, and there are times when we both break down and aren’t sure how the hell we got here, nor where the hell we’re going. But he’s been by my side since the beginning, and has been just so unbelievably selfless, kind, and loving. I feel so lucky to have him.”
Unsurprisingly, cancer tends to take a toll on Palma’s stay-positive spirit, so we had to wonder: How do you get to a happy place? What's the silver-linings playbook, if you will? “Sometimes what can be positive and inspiring one day doesn’t always have the same effect another day. The most important thing for me has been feeling supported and loved by my family, community, and medical team. Gardening on my rooftop, yoga, and going to therapy where we practice meditation have all also been super necessary to keeping myself calm and collected. Educating myself on the topic of breast cancer has also been incredibly helpful in feeling confident and empowered. That quote from Sun Tzu has so much meaning to me right now: 'If you know your enemy and know yourself, you can win a hundred battles without a single loss.’ ”
Though Palma may feel her plans for working in women’s rights have been put on hold, her experience is an opportunity to educate young women on breast cancer, and how to keep an eye out. She’s also seeking to debunk naive notions about cancer that likely exist among 20-somethings. "Lots of people seem to think that just because active treatment is over, that cancer is over. It doesn't work that way. Once diagnosed, you are always at risk for recurrence. Cancer is a lifelong fight, no matter how bad you got it, and the physical and emotional rollercoaster that it puts you on doesn’t just go away in the blink of an eye.” We imagine this is especially difficult for younger patients who have to cope with the idea of returning to a “normal” way of life post-treatment.
Palma also hopes her story helps to amplify the resources made available to women with breast cancer, both in education and support. “It's straight-up bull shit that the number of young women being diagnosed has tripled in the last 10 years. Yet, since we are still such a minority of diagnoses (two to three percent of all breast cancer diagnoses are under 30), there are so few resources for us out there. I would go onto blogs or community boards or whatever, and I just couldn’t connect to the language that a lot of people use. So much of what’s out there is fear-based and can seriously make you go crazy. I’m not into that. If all we do is talk about the scary shit, how the hell are we, as a community of breast cancer warriors/survivors/thrivers/whateveryouwannacallus, supposed to get through this?” Of course, Palma defaults to the perfect attitude here: humor. “Cancer f---ing sucks. But we also want to be able to laugh, and to believe that we can pull through this. That’s where the humor comes in. You’ve got to be able to laugh at cancer in its face.”
See the original article:
No comments:
Post a Comment