Wednesday, January 06, 2016

Snow Shoes for a Stroke Survivor

Rebecca Dutton
Home After a Stroke
January 4, 2016

Since my stroke I'm careful about venturing outside when it snows, but I'm not trapped inside until spring comes either.  I never walk on snow covered concrete, gravel, or grass. because uneven slippery surfaces are a fall hazard.  Oonce streets, sidewalks, and access to my car are clear I wear boots over my shoes to protect them from the slush.  Boots I tried on at a shoe store would not fit over my leg brace.  My leg brace won't let me point my toes which is a pre-requisite for donning boots.  On-line I found the Neos overshoe with a Velvro opening that goes all the way down to my toes.  The Villager model is lightweight and designed for occasional use which is perfect for me.

A video at www.overshoesonline.com shows how to don this boot.  Warning #1: I do not put the boots on while standing as the video shows because I do not have good standing balance.  My boots go on safely while I am sitting.  A trick the video doesn't show is to make the ankle straps as long as I can before I put on the boots.  After I snap the straps closed I pull on the ends of the straps to make them tight.  Warning #2: The first set of boots I ordered was too big so they flopped around when I walked.  Bottom Line: I get good traction from the treads and don't arrive with soggy shoes.  I walk more slowly with boots on, but that beats not being able to keep important appointments like a visit to the doctor.



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The Best Brain Food, is Soul Food

Tim Seefeldt
Brain Food Cafe for the Mind
Posted December 31, 2015

It’s been a great Christmas season for me, I hope the same is true for you.

I really wasn’t expecting greatness, to be honest. I was just shooting for stable. It’s been that kind of year. There’s the thing with my bride which I’ll blog in detail about soon. My oldest daughter, Kristina moved to Toronto for school in August. Until two weeks ago, I hadn’t seen her for four months.  A job change for me meant that I wasn’t flying to the big smoke every month so my convo’s with K have been by phone, text and FaceTime.

Downtown Canmore
Thank God for cheap long distance, text and FaceTime!

My youngest, Anna, had been so busy with school and work that I wasn’t seeing much of her, either. We decided that we would just hang out in Alberta, visit Pat’s parent’s for Christmas, take a run to the Canmore, AB to drink in the Rocky Mountains and then chill at home the rest of the time before the real world kicks in again on January 4.


Don't Believe the Hype -OR- Have You Been Lowballed? -OR- Clinician Fulfilled Prophecy

Peter G. Levine
Stronger After Stroke
Thursday, December 24, 2015

Bottom line: 
What the therapist predicted: very little
What the survivor achieved: a lot

Let me tell you about a stroke survivor I worked with a year or so ago. I'll call him "Joe."

I was working in a skilled nursing facility. I heard about Joe a couple of days before I met him. The front office had informed the therapies (OT, PT, Speech) that a new survivor was to be admitted from the hospital to our facility. The physical therapist that was to do Joe's admitting evaluation told me that Joe would be added to my caseload.

The next day I read the PT evaluation and it was pretty shocking. One thing stuck out: The "long-term goals" that were laid out by the evaluating therapist was on thing: "bed mobility."

There it was. The best that Joe was expected to do was to be able to roll around in his bed. He wouldn't be able to stand. And walking was beyond belief.

The day Joe was to have his first treatment I went to the nurses station to read his chart before I met him. Nursing facilities often have a cluster of patients in wheelchairs right around the nurses station. It's where all the action is.

“Who I am and Why I’m Here”

Diana Smith
Beyond Reality
January 3, 2016

My first assignment for blogging 101,  I am hopefully going to learn how to do this best finally.

First of all I am here in blogland to share my story of recovering from a stroke. I had three strokes by the time I was 47. The last one left me paralyzed and numb on one side, and a whole lot of messed up cognition issues that screw with a “normal” life but are not measured or even of interest to doctors (none that I have seen). I don’t want to be known solely as a pitiful disabled person that sometimes wets her pants. My mind still has clarity of many things, I still yearn to live the life I want and believe I was made for.

I have been a single parent on and off for almost 8 years. I am still searching for my soulmate. I share tales of my life as a grandmother, mother to a depressed teen, struggles of living on social security, my quest to be in tune with the Universe, my selling of vintage items, my attempts at humor and poetry, my gardening with one hand, cooking and baking low sodium foods, and more everyday life.

50 Shades of Lime

Sas Freeman
January 5, 2016

Ways of Immune Boosting


During the winter months especially, and for those of us not able to exercise as much as others, boosting our immune system is more important than ever.

One way we can do this is to increase our intake of fresh fruit and vegetables. Particularly foods rich in vitamin C and antioxidants help boost the immune system and help fight off flu & colds.

Lime
We can also rethink some of our regular daily drinks, instead of always reaching for tea or coffee try adding lemon or lime juice to hot water each day for one or two drinks at least.

Another thing we can do is increase our iron absorbency. Iron deficiency is one of the greatest reasons for anaemia in developed countries. Combining foods rich in vitamin C with foods rich in iron increases the bodies absorption of iron. This can be done so simply for example squeeze lemon juice on a salad with spinach or chickpeas, both rich in iron. Lime juice also has antibacterial qualities. Vitamin C also helps people with asthma, it assists in preventing asthma.

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Saturday, January 02, 2016

Saturday News

Emotion is, in everyday speech, a person's state of feeling in the sense of an affect. Scientific discourse has drifted to other meanings and there is no consensus on a definition. Emotion is often intertwined with mood, temperament, personality, disposition, and motivation. On some theories, cognition is an important aspect of emotion. Those acting primarily on emotion may seem as if they are not thinking, but mental processes are still essential, particularly in the interpretation of events. For example, the realization of danger and subsequent arousal of the nervous system (e.g. rapid heartbeat and breathing, sweating, muscle tension) is integral to the experience of fear. Other theories, however, claim that emotion is separate from and can precede cognition. A longer definition comes from Wikipedia.
    • Video: Emotional Recovery
      • Stroke Survivor’s How-To: Living With the Emotional Impact of Stroke
      • Feeling Overwhelmed -- The Emotional Impact of Stroke
      • Recovering Emotions After Stroke (Stroke #3)
      • PROVIDENCE-Stroke - Emotional Recovery - Chapter 1
      • PROVIDENCE-Stroke - Emotional Recovery - Chapter 2
      • The Link Between Stress And Stroke
      • Eddie's Video Diary - Stroke Survivor
      • STARs - Mood and Emotion After Stroke (Marion)
      • STARs - Mood and Emotion After Stroke (Murdoch)
      • The Neuroscience of Emotions
         Saturday News | Future Topic
         --------------+---------------------------------------------

         Jan/30/2016   | Neuroregeneration
         Jan/23/2016   | Global Warming
         Jan/16/2016   | Bobath (NDT - Neuro-Developmental Treatment)
         Jan/09/2016   | iPad Pro & Apple Pencil

    Definition: Emotional Recovery

    Emotion From Wikipedia, the free encyclopedia


    Emotions
    Emotion is, in everyday speech, a person's state of feeling in the sense of an affect. Scientific discourse has drifted to other meanings and there is no consensus on a definition. Emotion is often intertwined with mood, temperament, personality, disposition, and motivation. On some theories, cognition is an important aspect of emotion. Those acting primarily on emotion may seem as if they are not thinking, but mental processes are still essential, particularly in the interpretation of events. For example, the realization of danger and subsequent arousal of the nervous system (e.g. rapid heartbeat and breathing, sweating, muscle tension) is integral to the experience of fear. Other theories, however, claim that emotion is separate from and can precede cognition.

    Emotions are complex. According to some theories, they are a state of feeling that results in physical and psychological changes that influence our behavior. The physiology of emotion is closely linked to arousal of the nervous system with various states and strengths of arousal relating, apparently, to particular emotions. Emotion is also linked to behavioral tendency. Extroverted people are more likely to be social and express their emotions, while introverted people are more likely to be more socially withdrawn and conceal their emotions. Emotion is often the driving force behind motivation, positive or negative. An alternative definition of emotion is a "positive or negative experience that is associated with a particular pattern of physiological activity." According to other theories, emotions are not causal forces but simply syndromes of components, which might include motivation, feeling, behavior, and physiological changes, but no one of these components is the emotion. Nor is the emotion an entity that causes these components.

    Video: Emotional Recovery

    Stroke Survivor’s How-To:
          Living With the Emotional Impact of Stroke

    Published on Oct 28, 2014

    Annabel talks about the emotional impact of having a stroke at the age of 22, with tips and advice for other stroke survivors. To help the Stroke Association support more women to conquer stroke, visit http://strk.org.uk/1wDTDTu.

    Standard YouTube License @ thestrokeassociation


    Headline Blog: Emotional Recovery

    Definition: Blog (noun). Add new material to or regularly update to a blog. (≃1990s: blog shortening of weblog)

    My Heart Does Not Get to Choose

    Rebecca Dutton
    Home After a Stroke
    February 24, 2013

    I used to think emotions like joy and love are good while emotions like sadness and anger are bad.  Now I believe that how I react to my emotions is what is good or bad.  It is bad when I am so pre-occupied by mental chatter that I let moments of joy fly past me unnoticed.  It is good when I stop what I am doing and take a few seconds to appreciate when I am happy.  It is bad when I rerun upsetting episodes in my head.  It is good when I use anger to propel me towards a solution.

    IF I could go back and tell my younger self  to stop rerunning memories that upset me, I doubt it would make any difference.  First, when I was young I had the tremendous energy it takes to sustain emotional drama.  Second, being snubbed recently reminded me of how intense emotions can be.  Emotions can feel so real that they seem unstoppable.

    The Value of Acceptance

    Marcelle Greene
    Up Stroke
    Wednesday, July 20, 2011

    This time last summer I was in a dark place, exercising four hours every day and still not seeing the results I wanted. My imagined life as a disabled person stretched before me unwanted. Two years, I told myself. If, in two years, I can't stand this anymore, I will jump off a bridge. In tears once again when my husband arrived home from work, I followed him into our sunny garden to talk.

    "What I've been trying to figure out," I told him, "is why I was willing to work hard at a job for 11 years to make things better, but I am so quick to give up on myself."

    "Why do you think that is?"

    "Because at my job, there was the promise of something better – a raise, a promotion. But now, I'm working so hard just to get back to where I was."

    "It sounds like you haven't accepted what's happened," he said. "You're not trying to get back to where you were. You're trying to move forward from the day you had the stroke."

    Oh.

    So long as I focused on what I used to be or what I wanted to be, I could not be happy now. I had to realize that exercising like a maniac was not going to get me "there" any faster. I had to find ways to enjoy my life now and balance that with rehabilitation.

    I used to equate acceptance with giving up. Now I see it as a gateway to happiness.



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    Insanity Reigns

    Leslie
    Living After Stroke
    With Camp over and my brother back in Seattle, life changed again. I was actually home alone for many days each week.

    Even though in the first hallway I wore diapers and couldn’t wipe my own butt and in the second one I was completely treated like a child, the third hallway was the biggest bitch.

    Hard to believe but very true. See up to this point I had my ignorance. I had hope that I would recover eventually.

    Recover meaning; be “me” again. Walk, think clearly, use my hand, shower standing up, be 100% physically independent.

    Not one of the many therapists, nurses and doctors ever told me recovery was a lifelong process and not a destination.

    They all led me to believe it was possible. That the light at the end of the tunnel was me moving without thinking. My shoulder subluxation would disappear and my fingers would type again. Maybe not the 120+ Words they typed before but they would type.

    Consumed by Pain


    Let It Bleed

    Tim Seefeldt
    Brain Food Cafe for the Mind
    Posted April 5, 2015

    This was a week of bad news.

    I can’t get into what it was exactly. But it was that gut-wrenching stuff that first has you slip into denial, then into bargaining with higher powers, then finally, grudgingly and painfully into acceptance.

    And, hopefully, into the kind of acceptance that comes with action. What I can do in this case can only help emotionally, it can’t specifically impact things one way or another, but still…

    I want to write about the bad news. I did, actually, and then destroyed it because I can’t put it out there without betraying a confidence.

    My mind is a fog and I can’t focus on my original plan for this week’s blog. Wasn’t it Ernest Hemmingway who wrote something like; “Writing is easy, you just sit down at the typewriter and bleed”?

    So, I’ll follow Papa’s lead, and the Rolling Stone’s, too, and Let it Bleed.

    Emotional Processing Bias in Depression

    Bill Yates
    Brain Posts
    Posted 22nd March 2011

    Clinicians and individuals with depression understand the tendency for depression to be associated with over-interpretation of negative cues in the environment. Depression seems to heighten perception of negative environmental cues including interpersonal (or social) cues. The cognitive behavioral model of depression emphasizes the cognitive triad—a negative bias (view) of the self, the environment and the future.

    Functional magnetic resonance imaging is providing a model to study emotional processing and better understand how this processing may be disturbed in depression. When shown brief images of emotion-laden faces, subjects suffering from depression show exaggerated responses. Depressed or angry faces produce heighted amygdala responses in those with depression. Happy faces produce a blunted amygdala response.

    Teresa Victor and colleagues recently published a study in the American Journal of Psychiatry providing additional information about this emotional processing bias. (Disclosure:Dr. Victor is now a neuroscientist with the Laureate Brain Institute-my employer). She summarized her findings in a recent journal club.Here are the key findings from her recent research:
    • The amygdala response to facial images occurs even with brief subliminal (unconscious) presentations
    • Sad facial images activate the amygdala in depressed subjects (compared to controls) in both those with active and remitted depression
    • Happy facial images activate the amygdala in controls more than depressed subjects
    • Eight weeks of selective serotonin reuptake inhibitor therapy (sertraline) reverse(normalize) the amygdala response to facial emotion cues

    Waiting, or Not.

    Andrea
    A Year of Living In My Head
    Wednesday, December 10, 2014

    Do you feel like you are getting "better"? Are the people around you patient? Are you patient? Do you remember when you travelled down the road unaware of what a stroke can really do?Do you remember when strokes are what you have when you are quite mature in age, perhaps living in assisted living? Do you have a very different fear added to your emotional repertoire that you feel has been forced upon you? Do you have a view of what makes a life, and how you wish to enter death?

    Some days I have a pot of roiling questions twisting through my brain.I think they are actually always there in the background, I just don't recognize how they may change my approach to things.

    I have mentioned before, I will say it again, my trust relationship with my body is sorely compromised. I spend a lot of time weighing, rationalizing, arguing, accepting, promising and planning.I know nothing is certain, nothing is guaranteed. Except that I am here.There can be no waiting for me in this life anymore.Technically this is true for everyone, I feel like we have just had a bit louder reminder of our finiteness.I know that, but I also forget.

    How about you?



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    Motives

    Steven H. Cornelius
    Music and Stroke
    Posted on July 13, 2014

    I have been reading stroke blogs lately. Many offer practical advice. More than a few are inspirational. There are also posts expressing resignation, frustration, or anger. I witnessed all of these emotions among fellow patients during my stay (and later as a volunteer peer facilitator) at Spaulding Rehabilitation Hospital in Boston.

    For me, the effects of stroke have been humbling and occasionally humiliating, but also profoundly educational. Without question, my stroke has stimulated my thought life. Although too often it doesn’t show, in working through my various disabilities I am slowly becoming a better person

    I undertook rehabilitation with a sense of urgency. For me, recovery was a matter of social obligation and personal pride. I have met other stroke patients who pursued rehabilitation with equal tenacity. I have met others who put forth very little effort at all.

    Why do some people work hard on their recovery and others do not?  And why do some who work equally hard achieve less success than others? I suspect that answers to these questions have to do with a great variety of factors, including: age and general physical health, current life responsibilities and future possibilities, emotional state, and the nature of one’s stroke (the part of the brain that has been damaged).  I was blessed that my own stroke, which initially left me physically and cognitively impaired in a great variety of ways, did not diminish my desire to return to wholeness.

    Emotions Aren't Scary

    Beth Sinfield
    Beth's Story
    Friday, 6 November 2015

    I thought I'd write a blog post on the emotional changes after stroke. They can be hidden and very hard to understand. If you're maybe over emotional (like me) people will just assume you're depressed. Which is not the case. At all. People don't see the emotional side so when you are emotional or anxious, people don't understand and unfortunately, they judge. It is 100% normal to have emotional changes after stroke or brain injury, it is very common but we still don't like to talk about it that much.

    Ok, I'll be open with you, I suffer with emotional lability and anxiety. I see them as the worst combination of emotional problems sometimes. Emotional Lability (or Pseudobulbar effect- PBA), as defined by good old wikipedia, is 'a neurological disorder characterised by involuntary crying or uncontrollable episodes of crying/laughter.' Now people looking at this will think 'omg' or they might even think that I'm a complete weirdo who's emotionally unstable but I can tell you now that it's not like how it is characterised. I never experience uncontrollable outbursts of crying or laughter. My emotional lability is characterised by, kinda, 'over-the-top happiness' so basically I'm a very smiley, happy person. If you ask anyone, the first thing they'll say is that I smile a lot. Even when I'm angry or upset I will smile, I try not to make it seem deadly serious sometimes, that helps a lot. When I get angry I may giggle uncontrollably sometimes or I may cry; I always say that my brain makes it come out wrong. People then think that I'm upset but I'm really not. Trust me. So it's not awful, right?

    Emotional Recovery

    Elizabeth
    Thankful for Every Day!
    Wednesday, September 7, 2011

    As I embark on the ninth month of recovery it is finally the time to refine my focus on my emotional recovery. After all, I am hoping for a complete recovery in terms of body, mind, and  spirit..whole person/being recovery.  My physical:body recovery has been amazing. My cognitive:mind recovery has been slower...but none the less amazing too. I'm getting there one baby step at a time. My emotional:spirit recovery is only beginning. Ahhh...how daunting??? This whole process has been so beyond challenging both mentally and physically. And there is one big giant piece left in my recovery. The lucky thing is I get to do it.. I'm alive...after all this I can do anything! I am a very emotional person, and no this is not a result of my brain injury...it is who I am at my core, it's a big part of what defines me, and I am very glad that my emotional side was not lost with everything else. I have always been this way and hope to always be this way. I think being emotional is a very good thing. All of this brain stuff has definitely impacted my ability to process my emotions as they came though. I was so afraid of getting depressed that I chose to put all the scary, sad emotions aside and only focus on the tasks that were going to yield me recovery in the measurable sense. I couldn't handle all of the emotion associated with agreeing to have my head cut open, all the risks associated with that, and the intense focus that was required for maximum recovery. It was really hard to be all messed up and fully aware of all my deficits. The whole experience was very humbling and I was determined to not let it be crumbling. The months leading up to my surgery were grueling as I tried to accept what might be and plan accordingly. I was petrified only to find out after surgery that the unimaginable had in fact happened. I thought many times: O' God...help me be ready for this!!! As much as I wanted to be prepared...one can never be ready for this. So as panic set in, I checked the emotion and got down to work...,"Send me to rehab...I'll figure the rest out later".

    Stress, Depression May Boost Stroke Risk

    Jeff Porter
    Stroke of Faith
    Thursday, July 24, 2014

    Don't ignore stress and depression - it's already serious, and it could become even more serious. Check out this recent study how stress and depression may boost stroke risk:

    ▶ The study found that depression seemed to raise the risk of a stroke or a transient ischemic attack (TIA) by 86 percent. It also found that stress apparently raised stroke or TIA risk by 59 percent. And hostility doubled the risk, the researchers said. A TIA is a mini-stroke caused by a temporary blockage of blood flow to the brain.

    ▶ However, it's important to note that the study only found an association between the risk of stroke and negative emotions. It wasn't designed to prove that negative emotions can cause strokes.

    ▶ Still, "chronic stress and negative emotions are important psychological factors that affect one's health, and findings from this study link these factors to brain health in particular," said the study's lead author, Susan Everson-Rose, an associate professor of medicine at the University of Minnesota.

    ▶ "Patients and their health care providers should be aware that experiences of chronic stress and negative emotional states can increase risk for stroke," she noted.



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    Fatigue and Stroke, aka I'm Hittin' the Wall

    Joyce Hoffman
    The Tales of a Stroke Patient
    May 12, 2014

    (This post is not only for stroke survivors. It is for caregivers, family, friends, health professionals, and others who want to understand fatigue and stroke).

    I always pushed myself to the limit. I was like my father, who was shot in his auto parts store by some robbing druggies in 1971 and died on the spot, putting an end to his boundless energy. He worked twelve hours a day, seven days a week, and yet, when he returned home, he ate dinner at 8pm, and sometimes went out again, and always on the weekends, with my mother, who was a stay-at-home mom and had to deal with my boundless energy.

    But now that I've had a stroke, my energy has boundaries. All my friends will tell you. I get an entire list of the things I want to do in a day, but I'm always changing the schedule because when it comes to the list, I'm just too damned tired to finish all of it. Why is that? I wanted to know, and I found out a whole lot.

    Everybody feels tired at some point. It's the body's way of saying, "Slow down and rest awhile." But the National Stroke Association (NSA) says that post-stroke fatigue (PSF) affects as much as 70 percent of stroke survivors. PSF happens without warning and happens as much as years after the stroke. PSF is not just feeling tired and wanting to take a nap. With PSF, you have to take a nap.

    The NSA identified 3 types of fatigue for stroke survivors:
    • Cognitive (ex: mental fatigue, difficulty focusing, delirium)
    • Physical (ex: function limitations, spasms, pain, muscular weakness, interrupted sleep)
    • Emotional (ex: motivational deficits, depression, crying and laughing at odd intervals)

    9 Phrases Smart People Never Use In Conversation

    Ramon Florendo
    Life After a Stroke
    Jul 13, 2015

    We’ve all said things that people interpreted much differently than we thought they would. These seemingly benign comments lead to the awful feeling that only comes when you’ve planted your foot firmly into your mouth. Verbal slip-ups often occur because we say things without knowledge of the subtle implications they carry. Understanding these implications requires social awareness—the ability to pick up on the emotions and experiences of other people.

    TalentSmart has tested the emotional intelligence (EQ) of more than a million people and discovered that social awareness is a skill in which many of us are lacking. We lack social awareness because we’re so focused on what we’re going to say next—and how what other people are saying affects us—that we completely lose sight of other people. This is a problem because people are complicated. You can’t hope to understand someone until you focus all of your attention in his or her direction.

    What a Pain

    Barb Polan
    Barb's Recovery
    Posted 13th December 2013

    Once again, Amy (mycerebellarstrokerecovery@wordpress.com) has set me off on a riff … about empathy this time. See this for details: http://mycerebellarstrokerecovery.com/2013/12/12/empathy-vs-sympathy/

    You know the pain scale in some doctors’ offices - the ones that have a ruler with zero to 10?  Zero means “no pain,” and 10 means “the worst pain possible.” Zero shows a smiling face, while 10 is writhing in pain. My guess is that the goal of having the scale is to quantify pain, as though that’s possible. Give it a number and it’s scientific, right? Or is it to minimize the patient’s pain really – to communicate that it’s bearable? For example, a woman with appendicitis looks at the scale and thinks, “this really isn’t so bad – not like childbirth.”

    What does quantification do? Even if it’s quantified, the number is still subjective, an evaluation by the patient. But is my 10 the same as your 10? There’s no way of telling.

    One’s ego says, “Of course my pain is worse than yours: I have a very high threshold for pain, so my 10 must be far worse than yours.”

    And how do the numbers work? Are they additive? They’re numbers, after all, and adding numbers is easy. If a patient with a gallstone claims a 10, and I have an arthritic sacro-iliac joint (3), a muscle spasm in my neck (3) and an arthritic knee (4) – which I do – am I in as much pain as the guy with the gallstones?

    That one I know the answer to: nope.

    Suppose we use the same pain scale for emotional, instead of physical, pain.

    ‘Not Just for a Month’

    Sas Freeman
    June 2, 2014

    The Stroke Awareness month of May 2014 has drawn to a close for another year, but our contact with the general public with messages creating greater awareness of stroke should continue to be broadcast and shared.

    The message of what stroke is, how it can be prevented and the changes people can make to their lifestyles should be kept alive. Why should it sit on the back burner for 11 months?

    I believe if greater awareness continues and the general public make small changes to their life styles, the long-term result would be fewer strokes. The knock on effect would be fewer families’ lives being turned upside down overnight from being hit by the devastation of stroke.

    The realisation that the survivor may, as a result no longer be able to work, when they still long to, no longer able to be the parent they have been and still long to be. Instead of the stroke survivor looking after the family, the family now has to look after the survivor or become carers.

    Outside the family unit, stroke drains resources within the NHS, increases the cost of benefits, removes skilled people from the workforce, the list continues.

    What this month has highlighted to me is how Stroke Survivors are incredibly passionate about getting messages ‘out there’ to try to prevent further strokes where at all possible.

    The mission and desire must be to help prevent families having to experience what we and our families have and acting quickly when someone has a TIA would be a great start. Helping each other deal with the many challenges we are presented with following stroke, particularly, sadly the silent and emotional ones which are often the most difficult to address, especially for survivors without paralysis. Those survivors who have no visual signs of disability and whose appearance is very much as it always was, often have the most pressure to behave and carry out tasks as normal. As a fellow survivor I know that this is impossible and upsetting.

    You Could…

    Robin
    Rocky Mountain Stroke Survivor
    Posted on April 22, 2013

    In the last two weeks, I’ve had several people suggest, “Now that [you’re doing so well, you’re three months out, you’re recovering], you could moonlight.”  I’m sure they mean well.

    I think the first confusion is that for people who have not suffered a major medical set-back, the tendency is to equate HAPPY with BEING WELL.  The thing is, I’ve had a stroke.  Back before, if I felt like crap, I could go ahead and let it affect my mood.  I tried not to but if I had a migraine or a sinus infection, even if I wasn’t downright pissy, I was definitely subdued.  Having a stroke is a long term state of being.  I can’t base my cheerfulness, enthusiasm for life, or how chatty I am on how I’m doing.  I still feel low emotionally at night when I’m completely wiped out and at the end of the week for the same reason, but in general, how I feel physically has been taken out of the equation to determine how I feel emotionally.  I think those around me can see me smiling and chatting and clearly HAPPY and they are relieved to think that I am DOING WELL.

    Wanna Write a Book?

    Peter G. Levine
    Stronger After Stroke
    Thursday, February 6, 2014

    From the publisher of my book...You can email her directly (contact info, below) if you're interested. Best, -pete

    "I’ve been thinking about two possible new books on stroke for our list and I wondered if you might know of anyone who might be interested in writing them:

    A Caregiver’s Guide to Stroke: a handbook to help the caregiver, addressing all of the issues and best practices they should know about: creating and managing a health care team, dealing with the various physical, emotional and cognitive issues, etc. The right author would most likely be a social worker, therapist, or professional caregiver.

    Myths vs. Facts on stroke: a book aimed at dispelling the myths/misinformation about the causes, treatment, physical and cognitive impact of stroke."

    Julia Pastore
    Executive Editor, Demos Health Publishing
    jpastore@demoshealth.com



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    Eclectic Stuff

    Definition: Eclectic (noun). A person who derives ideas, style, or taste from a broad and diverse range of sources
    • -------------> No Post This Week  <-------------

    Weekly Columnists

    Definition: Columnist |ˈkäləmnist| (noun). A blogger or a journalist contributing regularly to a blog or newspaper

    Musing: Linking Executive Control and Emotional Response A Training Procedure to Reduce Rumination

    Dean Reinke
    Deans' Stroke Musing
    Wednesday, June 25, 2014

    This sounds exactly like what survivors need to  stop focusing on negative thoughts. What protocol is your doctor creating to solve this problem?  And if you had less damage because your doctor had prevented the neuronal cascade of death I bet you would be less likely to focus on negative thoughts.


    Linking Executive Control and Emotional Response A Training Procedure to Reduce Rumination

    by Noga Cohen¹, Nilly Mor², Avishai Henik¹
    1. Department of Psychology and the Zlotowski Center for Neuroscience, Ben-Gurion University of the Negev
    2. School of Education, Hebrew University of Jerusalem
    Noga Cohen, Department of Psychology, Ben-Gurion University of the Negev, P.O.B. 653, Beer-Sheva 84105, Israel E-mail: nogac@post.bgu.ac.il
    Nilly Mor, School of Education, Hebrew University, Mount Scopus, Jerusalem 91905, Israel E-mail: nilly.mor@mail.huji.ac.il

    Author Contributions N. Cohen and N. Mor developed the experimental design. Data collection was performed by N. Cohen and by three undergraduate research assistants. Data analysis was performed by N. Cohen under the supervision of N. Mor. The article was drafted by N. Cohen and N. Mor and A. Henik provided critical revisions. All authors approved the final version of the article for submission.

    ABSTRACT


    Stroke Survival: The Best Christmas Present Ever!

    Jo Murphey
    The Murphey Saga
    Wednesday, December 23, 2015

    I got the best Christmas present ever! I had been playing phone tag with my DAS (Disability Adjudication Services) worker (for Social Security Disability) since Friday morning. For some unknown reason, my cell phone went straight to voice mail rather than ring through. We called each other several times each time getting each other's voice mail. Finally at four o'clock, I left the final message on her voice mail, "Tag you're it. We'll try to play again on Monday."

    Contrary to my own motto of "Why borrow trouble by worrying," I spent the weekend in turmoil. I worried that the evaluation didn't turn out well and my days of independent living was over. I mean what else could it be? The psychologist said it would be a month before they got the test results. I did feel that I had done poorly on the testing after it was over. That was a alien feeling for me, who has aced almost every test since high school.

    Caregiver: Merry Christmas

    Diane
    The Pink House On The Corner
    Wednesday, December 23, 2015

    Merry Christmas from all of us 
    (here and in spirit) 
    at The Pink House on the Corner!






    I hate to admit, I didn't send out a single Christmas Card this year, as I just didn't have the heart to -- so if you are on my Christmas Card list, please accept this as my greeting to you this year.



    See the original article:
    in

    Jester: Female Medical Examination

    Jackie Poff
    Stroke Survivors Tattler
    During a lady's medical examination, the British doctor says, "Your heart, lungs, pulse and blood pressure are all fine. Now let me see the part that gets you ladies into all kinds of trouble."

    The lady starts taking off her undies, but is interrupted by the doctor.

    "No! No! .... Just stick out your tongue!"



    TED Talks - Sally Kohn: Let's Try Emotional Correctness

    TED.com
    Published on Dec 4, 2013

    It's time for liberals and conservatives to put aside their political differences and really listen to each other, says political pundit Sally Kohn. In this optimistic talk, Kohn shares what she learned as a progressive lesbian talking head on Fox News. It's not about political correctness, she says, but rather, emotional correctness.


    Standard YouTube License @ TED

    Rick Mercer Report: Forest Services & Sell Mailbox

    www.rickmercer.com

    BC Forest Services

    Uploaded on Oct 21, 2008

    Putting out some fires with the British Columbia Forest Services. 


    Standard YouTube License @ Rick Mercer Report



    Community Mailbox

    Published on Nov 16, 2015

    BREAKING: From Canada Post


    Standard YouTube License @ Rick Mercer Report

    Laid-Back Admin: What the *@!* is XKCD ??






    What the *@!* is XKCD ??  Can you pronounced it ??


    2011 we did not have comics in SSTattler; then we have various type cartoons, mostly great, on SSTattler between 2012 to 2015:
    • 2012 - For Better and For Worse, Dilbert, Garfield, and Pickles
    •   ""    - For Better and For Worse, Dilbert, Garfield, and Betty
    • 2013 - For Better and For Worse, Dilbert, Garfield, and Betty
    • 2014 - For Better and For Worse, Dilbert, Garfield, and Betty
    •   ""    - For Better and For Worse, Dilbert, Peanuts, and Doonesbury
    •   ""    - For Better and For Worse, Dilbert, Edmonton Journal, Doonesbury
    • 2015 - For Better and For Worse, Dilbert, Edmonton Journal, Doonesbury

    Dr. Beagle C. Cranium
    Stroke Survivors Tattler
    We (Dr. C & John A) decided to change the comics. But how, what, when, ...?

    We decided fairly quickly, the most different, weird, funny,... type of comics is XKCD (we're introduced by Dean R - Deans' Stroke Musing for at least 2 or 3 good XKCD comics).  It is free, the motto is "A webcomic of romance, sarcasm, math, and language", and About XKCD says (and other things) "What does XKCD stand for? It's not actually an acronym. It's just a word with no phonetic pronunciation -- a treasured and carefully-guarded point in the space of four-character strings."

    On this January 2 we will try XKCD - Watson Medical Algorithm on SSTattler - I think it is  great comics - on January 9th we will tell you further details, wrinkles, publish (or not), unknowable, and so on.

    XKCD: A Webcomic Of Romance, Sarcasm, Math, And Language

    |<               Random              >|

    Watson Medical Algorithm


    |<               Random              >|


    Warning: this comic occasionally contains strong language (which may be unsuitable for children), unusual humor (which may be unsuitable for adults), and advanced mathematics (which may be unsuitable for liberal-arts majors).

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