Showing posts with label ▷ Apr-28-2012. Show all posts
Showing posts with label ▷ Apr-28-2012. Show all posts

Saturday, April 28, 2012

Saturdays News - Caregiving






(SSTattler: first YouTube comes from Christopher Reeve Foundation.  I modified the text below says "stroke" as well.  Good YouTube.)

Caregiving

Caregiving is not a role people usually choose. It seems to choose us, emerging from events and circumstances beyond our control. Stroke, spinal cord injury, debilitation or sudden illness may come without warning.

This is a job that cannot be skirted and cannot always be delegated. It can be difficult, physically and emotionally. It can be time-consuming. While caring for loved ones can be enormously satisfying, there are days, it seems, that offer little reward.

Caregivers, the men and women who care for family members and loved ones, deserve to be recognized and supported for the vital part they play in the lives of people with stroke or paralysis.

Caregivers may work in isolation from others in similar circumstances but they share much in common. It is important that caregivers connect with each other, to gain strength and to know that they are not alone.

It is essential that caregivers know about tools -- the homecare products and services -- that might make their jobs easier. It's also important that caregivers are aware of community and public resources that offer assistance.

Caregivers also need to know that support and respite systems exist to address the well-being and health of caregivers themselves.

See as well:








Caregiver Rick for Stroke Survivor Isabel

(SSTattler: Rick Griffith formally has a job with TV Reporter and now he is a caregiver. See YouTube an example Jack Palance (had a stroke) Meets With Reporter Rick Griffith)

Why do I do it? In addition to I want to do it, I don't want to regret not doing it at the end. In sickness and in health", good line. As a sole caregiver for someone who is not easy to please I am cognizant of the pitfalls of co-dependency. By no means do I do everything for my wife as she struggles to recover from a major stroke at age 44 on September 1, 2007. She's a fighter, that's for sure. 

She made her escape from Cuba in 1991 in a small inflatable life raft; she was one of five adults in that tiny craft. Fives days and nights in rough seas with sharks constantly present, the U.S. Coast Guard picked them up half way between Florida and Cuba. She sought and was granted political asylum and became a Naturalized U.S. Citizen. Miss Leyva started her life in "the land of the free" in Las Vegas. This highly intelligent, well educated 29-year-old woman first made a living cleaning toilets at Caesar's Palace Hotel. When her collge transcripts were finally obtained and verified she became a teacher. Fluent in Russian, she was a perfect fit to teach Russian in the Clark County, Nevada School District. 

A major stroke at age 44 tried to leave her in a wheel chair; she refused: today she can walk. It tried to silence her: now she can speak roughly. Starving one half of her left hemisphere of oxygen, it tried to divorce her from her beloved novels in English, Spanish, and Russian: Her major language center is gone yet, she's cracking the reading code ever so slowly. She has been an out-patient at Scripps Memorial Hospital Stroke Recovery Center in Encinitas, California, since 2007. The stroke hit like a sunami on September 1, 2007; she was only 44. It happened at home following the first week of school at Oceanside High School where she taught Spanish since 1999.

She struggles to speak. Nothing at first, vast improvement to date and always building. Husband Rick Griffith is the sole caregiver. Since Isabel's stroke left her unable to speak, write, or read, communication is very difficult. We are a family with a mom and a dad, four lovable little doggies (three are adopted), two adopted kitties, two birds, and a pond full of goldfish.

Isabel and husband Richard celebrated their second wedding anniversary while Isabel was in the hospital following her stroke. Rick is a former TV news reporter whose new career is that of sole caregiver. He's a Contributing Writer for The Stroke Network.org. When he can find someone to sit with Isabel he works as a free-lance cameraman and on camera spokesman, as well as writing, editing, and voice-over work from home when possible.

Isabel and Richard live in Oceanside, California, San Diego County, California, U.S.A.

Now living on California State Teachers Disability Retirement life is challenging to say the least. Richard created a Video Blog, http://CaringForMissLeyva.com hoping to attract a corporate sponsor. At this writing, New York based ModestNeeds.org and PetMeds.com are sponsoring Miss Leyva.



Stroke Survivor Leaves Home Alone for Caregiver


Saturday Comics - April 28th / 2012




For Better and For Worse
by Lynn Johnston / 2006-11-09
"...nothing's changed"
Dilbert
by Scott Adams / 2012-04-26
"She can't hear you!"  

Garfield
by Jim Davis / 2012-04-24
"The computer has a virus!"

Pickles
by Brian Crane / 2012-04-16
"Everyone's got problems,..."


* For Better and For Worse" is a serious topic of stroke but with a very nice cartoons. It is all about Grandpa Jim had a stroke and 88 further cartoon "strips" that happened to Grandpa Jim. (See as well 
 the author Lynn Johnston).

** I tried to get low or free price at the people http://www.UniversalUclick.com/ for the images for the cartoons. It was too high for Stroke Survivors Tattler i.e. we are not a regular newspaper and our budget is very low. Fortunately, you will have to do only 1-click more to see the cartoon image, it is legit and it is free using GoComics.com and Dilbert.com.

Eclectic Stuff - April 28th / 2012

Definition: Eclectic (noun) a person who derives ideas, style, or taste from a broad and diverse range of sources.

Eclectic: Jackie - The Family ( Dinner Party! )

Eclectic - Jackie
To all of us with kids or grandchildren -
Can't you just see this happening!

A friend hosted a dinner party for family far and wide and everyone was encouraged to bring all their children as well.

All during the sit-down dinner one four-year-old girl stared at the uncle sitting across from her.

The girl could hardly eat her food for staring.

The uncle checked his tie, felt his face for food, patted his hair in place but nothing stopped her from staring at him.

He tried his best to just ignore her but finally it was too much for him.

He finally asked her ..........  "Why are you staring at me?"

Everyone at the table had noticed her behavior and the table went quiet for her response.

The little girl said:
"I just want to see how you drink like a fish."

Eclectic: Monty - Young Maria to Lady Gaga

Eclectic - Monty
A birthday dedication to none other than Lady Gaga, the person who got me here today. A perpetual thanks to you, Ms. Gaga! I love you and happy birthday girrl! Love, Maria :) See Maria Official Site.


(There is many version  of Maria's YouTube video.  
This version has nearly 2 millions viewings).





Eclectic: Rebecca - Shopping Is Supposed to Be Fun

See the original Blog: Home After a Stroke by Rebecca Dutton

About Me
Eclectic - Rebecca
I am an occupational therapist (OT) who specialized in stroke rehab.  I continued my education by having a stroke in 2004 that paralyzed my dominant right side.  Being an OT helped me deal with gaps in traditional treatment, from bed mobility to getting on an airplane.  Problem solving never ends because I walk with a brace and cane, have impaired balance, regained only partial use of my hemiplegic hand, have slurred speech when I'm tired, and have trouble finding the right words when I'm stressed.

Read the full article About Me.

There is a nice article on April 25th, 2021:

Shopping Is Supposed to Be Fun
Jupiter, Mars, Venus, and Mercury line up every 50 to 100 years.  This rare celestial event will happen before I go digging through my purse one-handed.  Digging through a purse is aggravating even when you have two hands.  Organizing my purse eliminates lots of frustration when I go shopping.  Every woman organizes her purse differently so this is not a how-to post.  The examples are intended to make stroke survivors aware of how much irritation a purse can create.  Shopping is supposed to be fun.
Having a purse that aggravates me is a buzz kill.

My car key has its own compartment.  It's attached to a wrist coil that makes it easy to retrieve quickly.  My house key is attached to a straight flexible coil that snaps onto my purse.  When I pull on this coil my house key slips out of its assigned pocket.  I don't want to be an easy target because I'm digging through my purse looking for a key.  A big compartment in my purse is a bottomless pit.  A small black bag keeps objects I rarely use out of the way. ......

Read the full article Shopping Is Supposed to Be Fun.

Eclectic: Randy - Six Facts About Guinness

(From VueWeekly)
Something's fishy
As with the production of many types of beer, Guinness brewing involves using isinglass from fish. The substance, which is obtained from dried swim bladders of fish, is a form of collagen used as a fining agent to settle out suspended matter in the vat. The substance is retained in the floor of the vat, but it's possible that small quantities could be carried over into the beer.

No false advertising here
Guinness's marketing slogan, "Guinness is Good for You" may be more than a clever pitch. Studies have shown it can be beneficial for the heart and the antioxidant compounds, which are similar to those in certain fruits and vegetables, are responsible for health benefits. This is due to the fact that they slow down the deposit of harmful cholesterol on the artery walls. As if you needed another excuse to drink up.

Don't try this in Canada

Saturday News Articles - April 28th / 2012


Wednesday, April 25, 2012

Enabling More Patient-Initiated, Active Movement

Dr. Avi Nativ:

    While doing his doctoral and post-doctoral research work in Kinesiology (the science of human movement) at the University of Waterloo, Dr. Nativ's focus was on brain organization, plasticity and rehabilitation. He was intrigued with scientific research findings that indicated the remarkable capacity of the brain to adapt after injury, and envisioned how such plastic changes could be encouraged through inventive ways of enabling more patient-initiated, active movement rather than the more conventional passive therapy approaches.

Research confirms that to regain function after stroke, rehabilitation therapy needs to be functional, intensive, and that the person needs to be mentally engaged in the activity. Range of motion  exercises or passive exercises, where the therapist moves the body part for you may keep your range of motion, but most likely it won’t  help you to regain functional use.

Dr. Nativ has focused on providing evidence based therapy — making therapy:
  • fun so people are mentally engaged,
  • functional – doing real activities like walking, playing soccer, ...,
  • intensive – doing a lot of the planned therapeutic activity.

Tuesday, April 24, 2012

“I Need Information”

When stroke survivors and their families are asked what they need immediately after a stroke,  a few months after they are discharged from hospital, and even many years post stroke, the majority will answer — “I need more information.”  In Thora Hafsteinsdottir’s recently published (2011) review of studies asking stroke survivors and their families what  information  they needed — they found:

  • Stroke patients and caregivers reported many and diverse educational needs, 
  • Stroke patients and caregivers information needs often were not met. 

Stroke survivors and families want information that is pertinent to their situation and about :

  1. all aspects of stroke , causes, prevention, clinical knowledge about stroke,
  2. stroke treatment and rehabilitation,
  3. living with stroke at home  and in the community — moving and lifting, nutrition, psychological changes, exercises. 

Why should information be so important to stroke survivors and their families? 

Constraint Therapy for Aphasia

Recently the same constraint therapy principles (Taub) have been applied to aphasia rehabilitation.  In speech therapy:
  1. Constraint means talking and avoiding compensatory strategies like writing, drawing, or gesturing,
  2. Forced use is talking, and,
  3. Massed practice is 2–6 hours per day of individual and group intensive therapy.  

The aphasia treatment and activities don’t differ much from traditional treatment approaches but they are intensive.  There are several places that offer this intensive therapy:

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