Posted on August 23, 2013
SSTattler: Nice recumbent (aka tadpole or trike)...
I meant to write about Stroke Camp first and this experience at Stroke Camp second, but you’re getting it out of order. It took me over a week to recover from camp and just as I was feeling myself again, we all got sick. So here we are weeks out without any posts. Maybe I’ll write my next one on how long it takes to bounce back from illnesses or vacations…
Ever since my stroke, I have lived in a continual carnival.
Because my stroke is cerebellar, I am constantly playing games of coordination, speed, dexterity to just get through normal activities. Reaching for something and picking it up is as challenging as one of those arcade games with the arm that you use to pick up a stuffed animal and drop it down a chute.
As I complete each task, I walk to the next along rigged paths that sway, rock, and jolt unexpectedly. The only place to sit down to rest is on the tilt-a-whirl. To eat lunch, I sit at a table that jiggles constantly. As my food bounces around, I have to reach out to catch each french fry…the fries jiggle around in the basket that is jiggling around its area on the table as my arm is being jiggled by the bouncing and shifting of my seat.
One of the rides, the “Bike Ride,” involves riding on something like the spinning teacups (only appropriately themed) and then being given a bike. I am put on a path that is constantly moving; it wiggles and swoops, suddenly jolts left or right or up or down. It is positioned in a tunnel that is constantly rotating a few days clockwise or counterclockwise in little jerks. Now ride! At the end of an exhausting day at the carnival, instead of going home to my quiet, still bed, I lie down on the tilt-a-whirl and try to sleep.