Showing posts with label ▷ 2014 Mar 22. Show all posts
Showing posts with label ▷ 2014 Mar 22. Show all posts

Saturday, March 22, 2014

Saturday News


Contents of This Week:

Def'n: Social Network - Blog? Twitter? Facebook? ...?

SSTattler SHORT definition: 
   Blog            = time-related, article,
   Twitter      = time-related, statement(s), maximum 140 characters,
   Facebook = time-related, short article, usually personal & > 140 characters...
-------------------
               

Contents Below:

   1. Social Networking Service

      a. Blog

      b. Twitter

      c. Facebook

      d. lots of other examples on the internet...


1. Social Networking Service
         From Wikipedia, the free encyclopedia


See for the theory:  Social Network From Wikipedia, the free encyclopedia.

The Tetherless World Weblog
A social networking service is a platform to build social networks or social relations among people who, for example, share interests, activities, backgrounds or real-life connections. A social network service consists of a representation of each user (often a profile), his social links, and a variety of additional services. Social networking is web-based services that allow individuals to create a public profile, to create a list of users with whom to share connection, and view and cross the connections within the system. Most social network services are web-based and provide means for users to interact over the Internet, such as e-mail and instant messaging. Social network sites are varied and they incorporate new information and communication tools such as, mobile connectivity, photo/video/sharing and blogging. Online community services are sometimes considered as a social network service, though in a broader sense, social network service usually means an individual-centered service whereas online community services are group-centered. Social networking sites allow users to share ideas, pictures, posts, activities, events, and interests with people in their network.

Video: Social Network - Blog? Twitter? Facebook? ...?

Just a sample about -- > Blog, Twitter, and Facebook...
(You will have to register to see most of Twitter and Facebook).

Social Network


a) Blogs


Blogs in Plain English

Uploaded on Nov 29, 2007

http://commoncraft.com A video for people who wonder why blogs are such a big deal.

This video comes in an unbranded "presentation quality" version that can be licensed for use in the workplace.


Standard YouTube License @ Common Craft



Saturday Comics




For Better and For Worse
Lynn Johnston - 2014/03/16

"Hmm, my knee gots a hole on it!"
Dilbert
Scott Adams - 2014/03/16

"I want you to create a clever video..."

Peanuts
Charles Schulz - 2014/03/16

"...when all of a sudden this big pile of string walked by!" 

Doonesbury
Garry Trudeau - 2014/03/16

"...my luscious little lozenges!"






  
** I tried to get low or free price at the people http://www.UniversalUclick.com/ for the images for the cartoons. It was too high for Stroke Survivors Tattler i.e. we are not a regular newspaper and our budget is very low. Fortunately, you will have to do only 1-click more to see the cartoon image, it is legit and it is free using GoComics.com and Dilbert.com.
Note: Now SSTattler are running cartoons starting on previous Sunday.

Eclectic Stuff

Definition: Eclectic(noun) a person who derives ideas, style, or taste from a broad and diverse range of sources.

Stroke Survivors Are Invisible - Change That - Start Blogging

Dean Reinke
Deans' Stroke Musing
Thursday, November 29, 2012

I originally wrote this 2 years ago and not one person notified me about starting their blog. With 11 million new survivors a year that's pathetic. Now that I'm getting 1000 hits a day maybe this will take. Start your own stroke blog. Stroke survivors as a whole are invisible, we need to change that.

Bringing stroke out of the shadows I don't want to find out 20 years from now that survivors still do not have a voice in their stroke associations and a way to direct where the future of stroke rehab leads.

Even if all we do is document our own case study that can immeasurably help another survivor.

You can create one here on Google:
  • How to Start a Blog on Google Blogger
  • Its free and I am sure there are other sites that allow free blogging.
  • Create a Blog for Free
  • Start Blogging & Share with Friends
  • Add Photos, Easy Blog Posting Tools
  • KaBlog.com
  • Start Your Free Blog
  • Simple, Easy, No Coding Necessary.
  • 100,000+ Use HubPages. Start Today!
  • HubPages.com
  • Start a Free, Fun Blog
  • Pictures, text, privacy controls
  • Free, easy, fun & safe. Start today
  • http://www.experienceproject.com/
  • WordPress.com — Get a Free Blog HereFree blogs managed by the developers of the WordPress software. Includes custom design templates, integrated statistics, automatic spam protection and other ...wordpress.com/
When you have created one and posted a few entries please send me a link. I want to see thousands/millions out there. If it is not in English please tell me what language it is in. I will add yours to my blog list for others to find. If you want to be found by google read my posting on how to stay informed of stroke rehab.


Do it now!!!!!!!



See the original article:
in

Sunday Stroke Survival ~ Social Media

Jo Murphey
The Murphey Saga
Sunday, March 16, 2014

Why as a stroke survivor or caregiver for a stroke survivor should you Tweet, pin, Facebook, or blog? For a few very good reasons:


  • You don't stuff your feelings
  • You find out you are not alone
  • Get and share information
  • At least I don't have it as bad as the other guy
These are just a couple reasons. Nobody knows the challenges I go through on a daily basis as someone who's walked in my shoes. They might not have had as devastating, or easy of a time with their stroke but they know or can relate to some of them.

It is so easy to think, as a survivor or caregiver, and stuff all the negative feelings. Be warned, doing this only hurts you and those around you. By saying you are having a bad day acknowledges those feelings to anyone that will listen. I've had my share over the past year and a half. If I had stuffed those feelings, I'd be in sorry shape about now both as a stroke survivor and a caregiver. I'd be ready for the closest mental hospital and consider it a fun vacation!

If I post "having a bad day" on facebook, or twitter, myspace, or any of the forums, or blogs that I write, I guarantee there will be at least ten emails or telephone calls from "friends" or family  that want to know what's wrong. That doesn't include comments. I put friends in parentheses because these are cyber friends. People I have never met in person who are closer to me than some my local face-to-face friends. You all know who you are.

Meeting Amy

Barb Polan
Barb's Recovery
March 11 / 2014

Amy, another stroke survivor with a blog (mycerebullarstrokerecovery.com), visited us recently.

We – or I at least – did a first-impression analysis of the other’s capabilities. Yes, yes, I know we’re not supposed to compare, but there we were, meeting for the first time after communicating online for months.

I tend to assume that each stroke survivor I “meet” online is in the same condition as I am unless their stroke was longer ago than mine (I expect them to do more than I) or they were more profoundly affected (I expect them to do less than I).

I regularly read Linda Cooper’s blog (http://leadingahealthylife.blogspot.com), and I remember being shocked a couple of years ago when she blogged about attempting to use a power washer to clean the dock at her summer lake house. At the time (or even now), if I tried the same, I’d be like a slapstick version of a firefighter holding a fire hose with so much water pressure he/she gets whipped around by the hose).

Where the Heck Is the Blog, "The Tales of a Stroke Patient"?

Joyce Hoffman
The Tales of a Stroke Patient
Oct 1, 2012

By now, the thought has probably occurred to you: Where the heck is the blog, "The Tales of a Stroke Patient"? I mean, what's going on here? Permit me to tell you about the last 3 weeks.

I turned the posts into a book. There were so many corrections, book cover design requests, and layout questions, it felt like I was on deadline every day. It felt that way because it was true, and being on deadline took me back to when I was working for the newspaper, to my television news writing job, and everybody who said, "I want it now!" For so long, I wished for work and that wish finally came true.

Thank you, Xlibris, for doing such a great job on my book. And thanks for the deadlines. I'll resume writing the blog shortly.

------------------
You can buy the paperback Xlibris version.
You can buy the Kindle (Amazon) version.



See the original article:
in

We Are a Blessed Community

Rebecca Dutton
Home After a Stroke
May 5, 2012

Rehab is never over but I don't tell family and friends about the never ending challenges I face.  It's tedious to explain my daily struggles to able-bodied people because I have to explain the problem before they can appreciate my solution.  Hearing a blow-by-blow description of the steps I go through to achieve success is not that compelling when experienced second hand.  There is a good reason why movies and TV shows skip over the boring repetitions needed to overcome any real challenge.

Family and friends don't need to know about stroke to be a great source of emotional support and fun.  I actually prefer to be with able-bodied people rather than therapists.  Family and friends are impressed by how much I can do for myself while therapists are always looking for my deficits.  It's not therapists' fault.  Insurance companies pay them to fix problems not document assets.

My life would be different if stroke survivors and caregivers couldn't blog.  The blogging community I keep in touch with is a God-sent.  I don't have to describe my problem in great detail because someone always knows what I am talking about.  I don't have to contend with disbelief about intangible deficits, like crushing fatigue or abnormal sensation.  I appreciate the encouragement I get from other stroke survivors.  I'm inspired by their courage.  I steal their solutions and share mine.  I laugh at their funny posts.  I learn more about stroke.  Their insights help me reflect on my own stroke experience.  This community helps me finish what formal rehab began.



See the original article:
in

Three Blogs

Grace Carpenter
My Happy Stroke
Monday, September 3, 2012

I've never been a prolific writer, but in the summer and early fall -- when my kids' routines are changing constantly -- my output slows to a crawl.

But I have been reading other people's blogs (and tweets).  Here are three blogs/websites that I've been enjoying for a slightly different angle on stroke recovery:

Finding Strength To Stand Again : Prosopagnosia (face blindness)
Blogger Tara Fall started to have seizures in her teens. At age 27, she had brain surgery to try to stop the seizures, but suffered a stroke in surgery. When she woke up, she couldn’t recognize any faces at all, including her own. Tara’s blog is an insightful look at an invisible disorder, prosopagnosia. She also talks about her life as a stroke survivor and a person with epilepsy.

Girl With The Cane : Disability Advocacy
Sometimes I’m so involved with my own recovery that I forget how many people are affected by other disabilities. Sarah Levis is a stroke survivor, but she addresses a broad range of disabilities in her writing. Her lively and informative blog is a great way to keep up with the disability community in general.

Stroke XYZ : Young(-ish) Stroke Survivors
This new website/blog/e-community is geared towards younger (loosely defined) stroke survivors and their caregivers, families, and friends. Isolation -- physical and emotional -- is a huge problem for stroke survivors and caregivers of any age, so I'm always grateful for any new voices/communities. I'm also grateful for new voices talking about aphasia: Kelsae, the blog author and caregiver to her husband Mike, has blogged about aphasia and the ways that aphasia affects relationships.

Happy reading!



See the original article:
in

First Post.

Andrea
A Year of Living In My Head
Wednesday, November 16, 2011

Okay first off I think it very telling in my description of this blog that I am"managing" doctors, friends, etc etc. I am not managing any of them... they are off doing their own thing and I am just trying to keep up. My regular pre-stroke doctors are all low key and calm and know me... my new neurologists and surgeons are all revved up and fast talking about things that I don't necessarily follow.

I don't know if this is common but I have been very "in my head" of late. Insulating, isolating myself from the present... in a way ignoring that which I cannot ignore. And no, that is not working for me.

Last night I got out of my little shell and went to a gallery opening at Wilder's school. It was the best ever -- just to remind me that AGAIN the world is still rolling along full of normal stuff. It helped that everyone was very outgoing and talkative and I love that. I also have to keep in mind that people deal with this sort of crap (tumors, cancer, illness) daily and hourly and by the minute... so I just need to get over my Why Me complex and deal. I have options, I am not dead. Stark reality works well for me. Sometimes. When I am not putting on rose colored glasses and putting my head in the sand.



See the original article:
in

Too Many Drugs for Older Patients?

Jeff Porter
Stroke of Faith
Thursday, March 13, 2014

Last blog post was about young people. Now, news about the older set.

A thought-provoking article asking the question Are oldest patients getting too many drugs?:

Photo from National
Institutes of Health
-- "The data strongly suggest that we are overtreating many healthy patients aged 80+ regarding stroke prevention," he wrote. 
-- "We need actively to rethink our priorities and beliefs about stroke prevention, actively informing and involving the views of the key person, the patient," he wrote. "Most of the patients will probably eschew the modest potential benefit, preferring the reduced burden of polypharmacy and side effects judged as 'minor' by the prescriber."
In the last few years of my mother's life, a wise physician told us that there's quite a balancing act about prescribing medicines for older people. Drugs can interact and interfere with each other. This is definitely a topic to have a serious conversation at the right time.



See the original article:
in

45,000 Views of My Blog Wow & Thanks!

Kate Allatt
A Rocky Stroke Recovery
April 13, 2013


OMG!

Now I don’t know 45,000 people so there must be some other reason for this?

Perhaps…..


  • My stroke ‘passion’ highs and depression lows have resonated with you all because you know how I feel?
  • OrYou are ever so slightly nosey and voyeuristic?
  • Or - This blog gave you the strength to cope with your life’s problems, because we all have them?
  • Or - You wanted to observe how my public progress – both good and bad – played out since the day my life changed 3 years ago?
  • Or - You want to learn and be educated from someone who continues to ‘walk her talk?’
  • Or - That you like my ‘shoot from the hip’ writing style, with all its grammatical errors?
  • Or - A combination of all the above?

Either way, I needed to write this blog to cope with stuff for ME. It has helped me more than you’ll ever know, but in doing so, I get the feeling it has helped you too, in some small way. I wouldn’t say that this has made my 3 year personal hell worth it, but it gives me so much comfort, along with all the fabulous people my Fighting Strokes charity helps worldwide.

Thank you,

Kate
X

P.S. This image below is very apt in as much as I have relied on my computer, my social media and my writing to cope !  ;)




See the original article:
in

Blog

Jul 23, 2013

It may seem like I put a lot of work into this blog, but I don’t.  These blog posts kinda write themselves, appear in my head, then I transfer them from my brain to the computer.  I guess the blog post writing area of my brain was not affected by the stroke. Anyway, it’s almost as if something else is writing through me, I’ve never experienced anything like this, it’s weird.  Is this how you writers feel?




See the original article:
in

Connections

Marcelle Greene
Up Stroke
Friday, March 9, 2012

The right hemisphere of the human brain has one set of motor neurons to control all movement on the left side of the body. Because the stroke damaged that section of my brain, I now make bizarre involuntary movements – similar to a dog that shakes its leg during a belly scratch. I rub my left eye … my fingers straighten.

My hope for regaining control depends on forging new neural connections between my healthy brain tissue and nerves. I often feel electrical impulses shooting through areas of my left side. When I feel these twinges, I visualize my neural pathways branching out like a root system.

The stroke has had a similar effect on my relationships. Word of it traveled to my family and friends; it stretched into the past to people I hadn't heard from in years; it branched out to friends of friends and total strangers.

The blog has contributed to this phenomenon, connecting me with survivors across the continent and readers around the world. I used to think people who put their lives on the Internet were odd. Who would want to be so public? Now I can't imagine recovering without it. Suffering in isolation makes the suffering so much greater.

Like my motor neurons, these human connections move me. In the face of mortality, fears and pretenses melt away, making my interactions honest and intense. Even strangers have become more accessible – they initiate conversation, they offer help.

The stroke has shown me that the pathways between us exist. We just have to access them.



See the original article:
in

Neuroaid: Partial Truth and Petty Theft

Peter G. Levine
Stronger After Stroke
Saturday, April 16, 2011



Click here to find the extent of the scam.

Amendment: August 12, 2013: A well run clinical trial using 1000+ participants showed neuroaid "...is statistically no better than placebo in improving outcomes." Find the results here.
(Thank you Ali Hussain Ali). 

From April 16, 2011:

Bottom line
  • Neuroaid is a drug that is made from traditional Chinese herbs.
  • Cost: $1,346
  • Effectiveness: The company says it works. The research disagrees.
Neuroaid has long been an easy joke among neurologists, psychiatrists and researchers. Here is an actual email:

Colleagues:

To Blog or Not To Blog?

Diane
The Pink House On The Corner
Wednesday, April 10, 2013

That is the question. At least, on my mind.

I'm afraid to say, I've grown a bit paranoid. Paranoid to the point of hovering over that "Delete This Blog" button. Ready to send The Pink House into oblivion. Thinking this blog is a big mistake.

This because I received an e-mail from a concerned reader warning me about "revealing too much" here regarding the lawsuit. The Hospital, you know, could be spying on me. Reading my posts daily. Looking for things to use against us. And I should keep this in mind before I post anything.

At first, I was merely flabbergasted. I mean, really, what have I said here but the truth? What, on earth, could be used "against" us?

Because I am a careful person and certainly not so stupid as to spill the beans on any of our attorney's strategies or tactics... But I went back through my posts anyway, looking for anything that would be detrimental to our case. That could be "used against us". Not that I found anything. And pretty much everything I've written about the lawsuit is basic stuff that The Hospital already knows.

Still....

Welcome to Prince Edward Island Stroke Recovery

Saturday, June 12, 2010

This blog (web log) has been created to share information with and support the stroke community of Prince Edward Island. It is also my personal hope that the national stroke community of Canada as well as the International stroke community will benefit from the information provided through future posts.

I have been a stroke survivor for the past nearly eight years having suffered a hemoragic stroke in August of 2002. During those eight years my recovery progress has been slow but steady. I continue to recover even though the health care professionals at the time were not optimistic that there would be any recovery beyond that magic cutoff time of six months.

Times are changing in the world of stroke and I will attempt to share the secrets of my recovery through the future posts of this blog.

Weird Mind Games

Robin
Rocky Mountain Stroke Survivor
July 19, 2013

Sometimes I start to wonder if maybe I’ve always been like this.  Most of the time, I am reasonable about it and know that it just started in January.  But sometimes, like tonight, I find myself thinking…”Maybe I’ve always been like this…”

We’ve been really working to pare down my life to something manageable (hence the silence here on my blog).  We’ve discovered that I can manage about two hours of productivity twice a day.  We’ve had almost two weeks now of gradually cutting back my activities and I was just starting to feel human.  Then today an exceptional amount of work that could not wait meant that I pushed myself to my limit…which is a frustratingly short four hours of work.

I am sitting in my chair on the porch waiting for supper.  My right visual field is grey.  I feel as if the entire world is spinning and I am willing myself to not notice.  My right hand and arm are excruciatingly achey.  I can’t hold my water in my right hand…I just drop it.  And I think: maybe…maybe…maybe I’ve always been like this and I just didn’t notice.  I start wondering if my past was really as alert and busy and functional as I imagine it to be.  It’s the pit of strokiness…not despairing, just stuck.