Saturday, November 29, 2014

Video: Hereditary Hemorrhagic Telangiectasia

More Than a Nosebleed: HHT

Uploaded on Dec 7, 2011

Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic condition affecting up to 1 in 5000 Americans. It is treatable, but no cure is yet available. Watch this video to learn about HHT and what you can do to help. Visit http://www.hht.org for more information.

Standard YouTube License @ HHT Foundation International









Don't Give Up Hope

Published on Sep 18, 2013

The story of Dan Zimmerman who suffered a stroke (HHT) in 2005 and how he has been able to overcome this and live a successful and rewarding life. The video also talks about his upcoming bike ride across the country (Anacortes, Washington to Key West, Florida) to raise awareness of and funds for stroke research.

From Dan Zimmerman: 

"Focus on your ability, not your disability"

This is a website about strokes and how a person can overcome the effects of a stroke to lead a positive, productive life. My name is Dan and I suffered a stroke in 2005 as result of HHT . Though recovery was difficult and took a long time, I am now able to do many things that were previously considered unattainable. For more details on my experience you can read my biography here or check out the first video below.

As a way to increase awareness of strokes and stroke survivors, I will be pedaling a recumbent trike across the country. This trip will demonstrate that suffering a stroke does not have to mean the end of a person's ability to enjoy an active lifestyle. We are calling this the "Road to Margaritaville Ride". For more information about the ride, and to see when and where we will be going, go to the bike tour page.

Standard YouTube License @ David Babcock







HHT Patient Talking About How She Discovered the Disease

Published on Mar 25, 2014

SSTattler: She had a TIA and 3 strokes.

An interview with a HHT patient.

Standard YouTube License @ Deby T







Despina's Story

Published on Oct 15, 2013

Despina's story is one that is sadly all too familiar. She lost her mother and her aunt within three days of one another due to HHT. Despina wears her HHT bracelet to raise awareness, to keep their memories alive and to keep fighting.

For more information on HHT and the HHT Foundation's work, please visit www.hht.org.

To make a donation please visit: http://bit.ly/GzP6ev. During the month of October anyone who makes a contribution of $25 will receive an HHT Awareness bracelet and Learn About brochure.

Standard YouTube License @ HHT Foundation International







Hereditary Hemorrhagic Telangiectasia (HHT) : Emma Hoyles Story

Published on Oct 3, 2013

Emma Hoyles HHT Story, for multimedia blog.

Standard YouTube License @ Mattie Crow







Will Power: A Boy's Road to Recovery

Published on Feb 10, 2013

Will NeSmith is recovering from a traumatic brain bleed that nearly took his life. NeSmith, 13, suffers from HHT, hereditary hemorrhagic telangiectasia, a genetic disorder that causes abnormalities in blood vessels.

Standard YouTube License @ Kelly Gilfillan







ABC-Channel 7 News: "Catching HHT Early Could Save Your Life”

Uploaded on Dec 5, 2010

Dr. Justin McWilliams, assistant clinical professor of radiological sciences and co-director of the UCLA Center of Excellence for Hereditary Hemorrhagic Telangiectasia (HHT), was featured Nov. 26 in a KABC-Channel 7 story about a young girl being treated at Ronald Reagan UCLA Medical Center for HHT, a genetic disorder that produces abnormal blood vessels. UCLA is one of only 10 designated HHT centers in the nation.

Standard YouTube License @ UCLA Radiology







HHT Awareness and Fundraiser - Cori Wright Yoga

Published on Oct 4, 2014

I am a woman on a mission to raise awareness and alternative treatments/further research on HHT - a blood disease. Thank you for watching my first (and amateur video!) Please share! Visit Advanced Yoga Teacher Training for HHT Research - for more information.

Standard YouTube License @ Cori Wright







The Daily Struggles of HHT and Raising Awareness

Uploaded on Apr 10, 2011

OurHopeHoldstheCure's shared video file.

Standard YouTube License @ Our Hope Holds the Cure







Community Supporter Award

Uploaded on May 20, 2011

Jody Nissan receiving the Canton Community Supporter Award for her efforts in educating the community and fundraising for Our Hope Holds the Cure and The HHT Foundation.

Standard YouTube License @ Our Hope Holds the Cure







Just Pronounce It: Hereditary Hemorrhagic Telangiectasia !!

Published on Dec 3, 2013

This is just a video having people trying to pronounce the disease.

SSTattler: ...and double difficulty for aphasia !! !!


Standard YouTube License @ cosmic stardust







A Night of Hope for HHT

Published on Nov 18, 2013


Standard YouTube License @ Bill Trail

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