A Day at the Beach (sort of)

Diane
The Pink House On The Corner

Tuesday, November 19, 2013

I did manage to get Bob to the beach while my sister was staying there, and managed to wheel him out to the end of the boardwalk to see the sand and the water in the distance. And I could see the wistful look in his eye. And he said, "Nice."

But after an hour, his pain levels skyrocketed.

So we didn't stay very long.

At one point, I went down to the water alone, to look out at the waves, and Bob told my sister, "Sad."

Bob with my sister and her friend at the beach motel.

Afterward, he told me, "I try."

I tell you, it breaks my heart that he can't enjoy simple things like a sunny day at the beach, anymore.

Anyway, last Friday, we went back to the neurologist and Bob got a second set of Botox injections in his neck, leg and also in his right foot.

Yes, you read that right:  right foot. That because the post-stroke dystonia is spreading and now the  toes on his right foot are starting to curl in just like they did in his left foot. It seems, in fact, that his whole body is sort of twisting and he is no longer comfortable sitting in the wheelchair.  And although his left toes have been surgically straightened, he is still complaining of pain in that area.

The neurologist thinks the pain Bob has been experiencing in his foot and also his mouth are caused by "central nerve pain" and he prescribed Lyrica. Which Bob's used once before and it didn't seem to do anything. But this is different pain, so we'll try it again and see what happens.

Meanwhile, my sister has gone back north and life is back to "normal" here. And I am feeling recharged and much more relaxed, though a bit sad to see her go...

But good news: I got 20 more units of home PT approved by the insurance! So Bob will have therapy through the end of the year. Then, I'll have to fight for more.

See the original article:

A Day at the Beach (sort of)

in

The Pink House On The Corner