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| DianeThe Pink House On The Corner |
Things have been chaotic here, not only trying to buy a house (inspection on Thursday pointed out some other problems i.e. roof, hvac and we have more contractors giving bids and I have until Thursday to decide to go ahead or not) but meanwhile, Bob is cold/clammy/sweating and coughing a very wet cough, plus blood pressure a bit high, and chronic diarrhea -- but no fever.
And we had to run (quite literally) out of two therapy appointments and one doctor's appointment because diarrhea was leaking down the wheelchair..... GA!
And have you ever tried to change a Depends filled with diarrhea on an immobile, 6'3" guy who can't stand up, heck, can't even breach up his butt while sitting in a wheelchair?? Doesn't work so well. I know -- I tried last week and ended up with poop on my arms, hands, shirt and even in my hair! and I still didn't succeed....
Later that night, I could still smell it and found poop smears on my wrist watch.... aaaargh!
So, Friday, off to the primary care doctor who thinks it might be pneumonia and wants a chest x-ray and I'm saying, what? on Friday afternoon at 2:00 p.m.? Before a holiday weekend? When I have to leave there and run to the bank because the seller (bank) who owns the house we have an offer on will not accept a check for escrow but wants a bank wire transfer before Monday --- grrr.... So doctor decides to just put Bob on antibiotics and see what happens -- at least this is what I understand, until Tuesday when I get a call from an "imaging center" wanting to schedule Bob for a chest x-ray after he's been on antibiotics now for four days -- huh? Which I declined... as what's the purpose of that??? Anyhoo, Bob seems better but is really tired, but has stopped the coughing, though is still sweaty but then, hell, I'm sweaty -- it is still summer here in Florida...
Speech therapy is going well, but the ST is giving Bob harder and harder problems to work on, trying to get him to say spontaneous sentences etc. and at one point Bob was in tears as he couldn't think of the words... but still, ST says Bob is "graduating" and saying more and more words!
PT not so well, especially since last two sessions interrupted with diarrhea...
But Bob did get the go-ahead for four more weeks for both therapies... Yay!
Well, that's what we got and I tell you, it's been on it's last legs for a long long time. In fact, I can no longer access popular sites like YouTube as the E-Mac software is no longer supported. (And that explains why no new videos of Bob speaking!) Well, went there with Bob and got a new computer (Bob pointing to the one he said was "nice!" though, I don't know, seems the monitor is a bit big for me, but he was always the computer geek of the family, so I let him make that decision) now, I'm trying to set this whole thing up and transfer all my files over, which is, to say the least, not as easy as it sounds, but I am getting there and am trying figure out how this new system works....
Add to this, the usual stuff (laundry, bed baths, dressing, catheter changes, lifting, etc) and add pharmacy screw ups and insurance not paying for things, and still glitches in setting up the trust fund and many phone calls trying to get everything figured out -- plus I've been trying to get ready for a move and so spent a day cleaning out one closet and threw out some stuff only to find myself up at midnight digging through the dumpster retrieving the stuff I threw away, because ga! It's hard to throw away stuff, especially Bob's stuff... and I don't know, I should be happy now but I am truly stressed and really overwhelmed and not doing so well, right now... And yeah, I should sell The Green Machine! I am truly overwhelmed, and just want to crawl in bed and hide under the covers....
So this blog has been quiet -- as things have been really horribly chaotic here at the Pink House on the Corner....
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