Tuesday, March 13, 2012

Are Stroke Survivors Getting The Rehabilitation They Need?

A 2009 article charges that stroke rehabilitation in Canada continues to function under models and practices that have changed little in the last four decades and struggles to implement new evidence-based or best practices.

Despite significant investment starting over a decade ago (2000) in evidence based reviews, best practice guidelines, standards of care, and centralized data collection—critical outcomes for stroke patients have not improved.  Only about 6% of the stroke budgets were spent on rehab and community care.
  • There is strong evidence that rehabilitation needs to be intensive and functional, yet many rehabilitation patients continue to receive minimal practice.  In fact many stroke survivors in rehabilitation spend the majority of their time alone and resting.
  • Pressure to move people through the rehabilitation system has resulted rehabilitation centres accepting patients with much milder impairments.  This is measured by rising admission FIMtm scores.  Severe stroke patients often cannot access the stroke rehabilitation system. 
  • Maintenance care is declining or nonexistent.  Families and stroke survivors are not supported once after discharge from hospital. 

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Saturday, March 10, 2012

Saturdays News - Trevor's Brain Was Almost Cut In Two










This video shown by CTV (not YouTube). 
Please ignore the first 15 seconds of advertisement.

Trevor's Brain Was Almost Cut In Two ...
W5: Baby Steps (movies part 1 & 2)
2nd March 2012









If Trevor Greene and Debbie Lepore had never met, you wonder if he would have had the will to recover from a devastating injury to his brain in 2006.  It happened in Afghanistan when Trevor, a Captain in the reserves, was serving with the Canadian Army.  After removing his helmet as a gesture of peace during a meeting with elders in a remote village, Trevor was attacked by a Taliban fighter who had an axe concealed beneath his clothes.  Trevor's brain was almost cut in two. It was the beginning of a long march to survive and recover, a six-year saga of willpower and the love between Trevor and Debbie.


Captain Trevor Greene, Canadian Armed Forces 
(in YouTube)
Remembrance Day - 11th November 2009




Update on Capt. Trevor Greene of CAF, recovering from a brutal axe attack in Afghanistan.

See also:

  • Very nice site, ReBuildingYou (http://www.rebuildingyou.com/).  Many articles about stroke and brain injuries.  One article, Peace Warrior, a remarkable story of recovery, Captain Trevor Greene.
  • In YouTube, there are at least about a half-dozen movies about Capt. Trevor/Debbie Greene and most them are good to view.

Saturday Comics - March 10th / 2012




For Better and For Worse  by Lynn Johnston /2006-10-20
(This a serious topic of stroke but with a very nice cartoons. It is all about Grandpa Jim had a stroke and 88 further cartoon "strips" that happened to Grandpa Jim [11th of the series stroke of 88 -- every week])
Click Me!

 "... I don't have to eat my carrots !"   



Dilbert               by Scott Adams / 2012-03-10
(Pick The Best Of The Week for your good humour)
Click Me!

"What went wrong this time?"



Garfield            by Jim Davis / 2012-03-04
(Pick The Best Of The Week for your good humour)
Click Me!

"I'm done with March!"



Pickles                 by Brian Crane / 2012-03-07
(Pick The Best Of The Week for your good humour)
Click Me!

"Earl, aren't you going to answer the phone?"



I tried to get low or free price at the people http://www.UniversalUclick.com/ for the images for the cartoons.  It was too high for Stroke Survivors Tattler i.e. we are not a regular newspaper and our budget is very low.  Fortunately, you will have to do only 1-click more to see the cartoon image, it is legit and it is free using  GoComics.com and Dilbert.com.

Saturday News Articles - March 10th / 2012


Friday, March 09, 2012

Stroke Rehabilitation - Who Says It Can't Be Fun?

Written by Julie Taylor


I loved reading this story by Dakshana Bascaramurty in the Globe and Mail on the 14th June 2010 - I thought you might enjoy it too? It's yet more about the near-miraculous rebuilding that the brain can do - if given a chance...

While Jean-Guy Thibault was in a Montreal rehabilitation hospital in 2008 after a massive stroke, he made a promise to his occupational therapist: "One day, I'm going to have a beer on Saint Catherine Street and watch the girls go by."

It seemed like a long shot at the time: He couldn't walk, sit or even hold a pint. The 66-year-old underwent intensive rehab for eight months, but his left arm was still paralyzed by the time he was sent home to continue his recovery on his own.

Then, about two months ago, he participated in a clinical trial for an emerging field of therapy: video-game rehab. In recent years, researchers around the world have been investigating the potential of virtual reality to help victims of stroke and other brain injuries.

Read the full article Stroke Rehabilitation - Who Says It Can't Be Fun?

Disability Etiquette.

Written by Julie Taylor

How can you enhance the day of a person with a disability?  Or just not ruin it?  Often simply by addressing them with respect and friendliness. More than ever before, I am delighted to see persons with disabilities enriching the lives of all of us by being in our classrooms, shops, workplaces and in society in general.

As with anything new, we often worry about how to behave with other people.  And that very worry often causes us to be inflexible and uncomfortable with new situations.  Relax - please - and just treat us with respect and decency.

Read the full article Disability Etiquette by Julie Taylor.

Saturday, March 03, 2012

Saturdays News - How It Feels To Have A Stroke?









     

How It Feels To Have A Stroke?

Neuroanatomist, Jill Bolte Taylor, Ph.D., had an opportunity few brain scientists would wish for:  One morning, she realized she was having a massive stroke. As it happened -- as she felt her brain functions slip away one by one, speech, movement, understanding -- she studied and remembered every moment. This is a powerful story about how our brains define us and connect us to the world and to one another.

Jill Bolte Taylor written a great book, usual at Chapters or,  you can order at Canadian Amazon My Stroke of Insight: A Brain Scientist's Personal Journey.

Stroke Survivors Tattler we will show only one on Jill Bolte in YouTube of many. You can also look at Jill Bolte in TED (http://www.ted.com).



TED is a nonprofit devoted to Ideas Worth Spreading. It started out (in 1984) as a conference bringing together people from three worlds: Technology, Entertainment, Design. Since then its scope has become ever broader. Along with two annual conferences -- the TED Conference in Long Beach and Palm Springs each spring, and the TEDGlobal conference in Edinburgh UK each summer -- TED includes the award-winning TEDTalks video site, the Open Translation Project and TED Conversations, the inspiring TED Fellows and TEDx programs, and the annual TED Prize. Please see http://www.ted.com.

Saturday Comics - March 3rd / 2012




For Better and For Worse  by Lynn Johnston /2006-10-19
(This a serious topic of stroke but with a very nice cartoons. It is all about Grandpa Jim had a stroke and 88 further cartoon "strips" that happened to Grandpa Jim [9 of the series stroke of 88 -- every week])
Click Me!

 "Mrs. Richards, I'd like a word with you, please."   



Dilbert               by Scott Adams / 2012-03-03
(Pick The Best Of The Week for your good humour)
Click Me!

"One great ideas is worth more than ..."



Garfield            by Jim Davis / 2012-02-29
(Pick The Best Of The Week for your good humour)
Click Me!

"Why don't you love me ... ?"



Pickles                 by Brian Crane / 2012-03-01
(Pick The Best Of The Week for your good humour)
Click Me!

"You're good husband but ..."



I tried to get low or free price at the people http://www.UniversalUclick.com/ for the images for the cartoons.  It was too high for Stroke Survivors Tattler i.e. we are not a regular newspaper and our budget is very low.  Fortunately, you will have to do only 1-click more to see the cartoon image, it is legit and it is free using  GoComics.com and Dilbert.com.

Saturday News Articles - March 3rd / 2012

Eclectic: Lori - Left Vs. Right

From Lori
I was talking about my right brain today with a co-worker, I am very thankful that I had a left hemisphere stroke, not that I wanted to be a stroke survivor, but that I love that I am a right brain person! Your right  brain is in charge of imagination, being random, subjective and intuitive... it totally sums me up. I have really struggled learning to re-read, write and speak, not to mention that I still can't do any type of number problems or math... but the struggles were worth to be me still, the silly, immature, artsy Lori!

Sounds crazy, but I am proud to be a right brained learner... I love art, music, building, not following directions, laughing, dancing... I may never win a noble peace prize... but I warm my family and friend's hearts and that means the world to me!

Right Brain Characteristics: 
      Here are some of the basic  ... 
Read on --> New Life After Strokes Blogspot  / Left vs. Right.

What is your experience – Grief and loss or Hope and Setting new goals?

After stroke, stroke survivors and their families are often told to be realistic about recovery.  Health professionals try to focus on keeping things realistic—a balance between giving hope and avoiding false hope.  Does being realistic mean you shouldn’t have hope or that you shouldn’t set new goals?

Hope
When people are faced with a health crisis, they often struggle between hopefulness and hopelessness (Tutton el a., 2011). After spinal cord injuries, people cycled between ‘being in despair’ or ‘being in hope’ (Lohne, 2008). However, even at the end of life and in palliative care, Dr. Wendy Duggleby found that people have hope. They focused on hope for that day (Duggleby et al. 2010).