Over 80% of homecare is provided by unpaid care-partners. The unpaid work of these 2.1 million Canadian care partners saves the Canadian health system over $5 billion each year 1,2.
A 2007 Canadian study of 14 stroke care-partners identified barriers and facilitators to undertaking and maintaining care-giving.
Barriers included:
- Lack of collaboration with the health care team,
- The intensity of the caregiving role,
- The negative impact on the caregiver, and
- The lack of community support for the caregiving role.
Facilitators were:
- Coordination of care,
- Progress of the patient towards normalcy,
- Mastery of the caregiving role,
- Supportive social environment, and accessible community resources.
Read the full article: White CL, Korner-Bitensky N, Rodrigue N, Rosmus C, Sourial R, Lambert S, Wood-Dauphinee S. (2007) Barriers and facilitators to caring for individuals with stroke in the community: the family's experience. Canadian Journal Of Neuroscience Nursing 29 (2), 5-12.
Support for care-partners may decline with time.
An Australian study surveyed 184 carers to people with brain injuries discovered that both in-formal support networks (family and friends) and formal supports provided by the health system (homecare, rehabilitation) declined over time.
- Services progressively declined as they transitioned through the healthcare journey with their family member
- 61% of the carer respondents recollected accessing inpatient rehabilitation following their acute care but only 33% of carers reported receiving ongoing services following discharge
- 25% of carers stated they received inadequate information while transitioning through their healthcare journey
- fewer than 20% of carers recollected receiving any formal support service
Read the full article: O’Callaghan, A.M., McAllister, L., & Wilson, L. (2011). Experiences of care: Perspectives of carers of adults with traumatic brain injury. International Journal of Speech-Language Pathology, 2011; 13(3): 218–226
References:
- 1.Commission on the Future of Health Care in Canada. (2002). Building on values: The future of health care in Canada. Available atwww.healthcarecommission.ca
- 2.Lemieux-Charles, L., Chambers, L.W., Brazil, K., Cockerill, R., Jaglal, S., Le Clair, J.K., Cohen, C., Dalziel, B., Schulman, B., Cetinski, G., Dempsey, M., & Montemuro, M. (2002). Dementia care networks' study. Canadian Health Services Research Foundation. Available atwww.fcrss.ca
More information: The Romanow report-- http://www.mapleleafweb.com/features/romanow-commission-future-health-care-findings-and-recommendations
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